
Survey of Neurofibroma Removal
We are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…
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We are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…
Read MoreWhen we learned from Jamie Dornbush how many, including her, in her extended family were recently found to have neurofibromatosis…
Read MoreWritten for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
Read MoreDear Friend, At this time of the year, we need your reinforcement with a small donation of $10, $25, $50,…
Read MoreThe Neurofibromatosis Network presented this webinar on social emotional development in neurofibromatosis in September of 2014. The speaker was Sandy…
Read MoreThe Neurofibromatosis Network presented this webinar on seizures in neurofibromatosis type 1 in May of 2014. The speaker was Dr….
Read MoreToday is a sad day for me, my last day at NF Midwest. I have taken a position closer to…
Read MoreWe love and appreciate ALL of our volunteers and supporters, but we are especially in awe and inspired by those…
Read MoreThe sounds of progressive bluegrass and contemporary acoustic music filled the air on September 27, as hundreds of people enjoyed…
Read MoreNeurofibromatosis is a chronic, life-long disorder and unfortunately we find that adults with NF often neglect their own care. Sometimes…
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