Volumetric Measurement of Tumors in Neurofibromatosis
At NF Midwest’s annual symposium in October 2014 we invited Eva Dombi, MD, from the National Cancer Institute to present…
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Check out past blogs and news!
At NF Midwest’s annual symposium in October 2014 we invited Eva Dombi, MD, from the National Cancer Institute to present…
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Dr. Maria Acosta at Children’s National Medical Center is looking for parents of children with Neurofibromatosis Type 1 in which…
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NF Midwest has previously funded studies by Dr. Klein-Tasman’s team that has resulted in valuable information on the cognitive abilities…
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At our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on…
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Every year NF Midwest funds many kids with neurofibromatosis to go to Camp New Friends in West Virginia. We are…
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Crystal Reith has a great strategy for raising NF awareness through the West Central Wisconsin NF Midwest group that…
Read MoreIf you have a child with neurofibromatosis, consider sending them to Camp New Friends. Now is the time to sign…
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We are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…
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When we learned from Jamie Dornbush how many, including her, in her extended family were recently found to have neurofibromatosis…
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Written for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
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