New DJ joining the Great Steps 4NF Madison walk!
We’re excited to have the Madison Mobile DJ Service join us this year for our GS 4NF Madison 2016 walk! Travis…
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Check out past blogs and news!
We’re excited to have the Madison Mobile DJ Service join us this year for our GS 4NF Madison 2016 walk! Travis…
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Help researchers know what people with NF1- associated Plexiform Neurofibromas need! If you or your child has NF1 and a…
Read MoreLeading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes approved. For two years NF Midwest has…
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Are you a student with neurofibromatosis who will be taking college courses in the fall of 2016? This could be…
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The Children’s Hospital of Wisconsin is holding an NF Symposium on Saturday, April 16th from 8:30 am to 12:30 pm….
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The Littlest Tumor Foundation is hosting its sixth annual NF Family Wellness Retreat at the Imago Dei Village campground (Clintonville,…
Read MoreNF Midwest is very excited to have Rick Guidotti of Positive Exposure speaking at our symposium Saturday, October 24th. Rick…
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Last week representatives of NF Midwest, along with members of other NF organizations, stormed Capitol Hill in Washington DC asking for support…
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Researchers at Indiana University are creating a survey on how having NF1 affects people’s health and well-being. This tool will become…
Read MoreFour years ago my granddaughter Aydin was diagnosed with neurofibromatosis or NF. To be perfectly honest, I had no idea…
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