News/Blog

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New Care Guidelines for Children with NF1

Posted By NF Midwest | On April 23rd, 2019

The American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type…

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NF Family Night at the TinCaps in Fort Wayne

Posted By Diana Haberkamp | On April 18th, 2019

Amazing volunteers in Fort Wayne are doing it 4NF and have put together a special family night for people in…

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Camp New Friends 2019

Posted By NF Midwest | On April 2nd, 2019

If you have a child with neurofibromatosis, please consider sending them to Camp New Friends. Now is the time to…

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Request NF Research Support For 2020

Posted By Diana Haberkamp | On March 15th, 2019

Protect federal funds for neurofibromatosis by acting now! Fill out the form below to Raise your Voice for NF Research….

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October 2018 Slides and Transcript – Resiliency

Posted By NF Midwest | On March 4th, 2019

At our October 20th, 2018 symposium, we had the pleasure of learning strategies and skills to improve resiliency and overall…

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October 2018 Symposium Transcript – Neuromuscular Retraining for Facial Paralysis

Posted By NF Midwest | On February 27th, 2019

At the October 2018 NF Midwest Symposium and iNFo Fair, Jackie Diels, OT, a leading authority on facial neuromuscular retraining…

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Janna – A Face of NF

Posted By NF Midwest | On January 31st, 2019

Our daughter Janna was diagnosed with neurofibromatosis type 1 when she was five months old. Doctors tell us that it…

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Young Adult Leadership Program

Posted By Diana Haberkamp | On January 28th, 2019

Because the neurofibromatosis cause needs New Fighters and young iNFluencers! See photos This January I had the extreme privilege of…

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2019 Scholarship Applications Now Being Accepted

Posted By NF Midwest | On January 17th, 2019

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

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Ify – A Face of NF

Posted By NF Midwest | On January 15th, 2019

My husband and I had never heard of NF1 until May 2015 when our daughter, Ifunanya or Ify (pronounced “eff-ee”),…

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