
iNFo Fair 2018: Care Guidelines for Adults with NF1
For adults with neurofibromatosis (NF) type 1, finding good care and doctors who are knowledgeable about the many complications and variations…
Read MoreCheck out past blogs and news!
For adults with neurofibromatosis (NF) type 1, finding good care and doctors who are knowledgeable about the many complications and variations…
Read MoreWe’re excited to tell you about another one of our presenters for our October 20th NF Midwest Symposium and iNFo…
Read MoreWe almost have all our presenters set for our October 20th NF Midwest Symposium and iNFo Fair. To see the…
Read MoreSam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…
Read MoreNeurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…
Read MorePlease join us for an afternoon of family, new friends, food, fun, raffles, competition and a great cause! Whether you’re…
Read MoreLevi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…
Read MoreWe inherited NF1 from our mom, Shirley, who passed away from breast cancer at the age of 53. She fought…
Read MoreCheck out our Spring 2018 NF Midwest Newsletter! The highlights of this issue include… Research grants are given to the…
Read MoreThe Fillmore Family (GSWalk4NF Wisconsin/Madison team) invite you to join them at their annual Neighbor Day. This year part of…
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