NF Family Night at the TinCaps in Fort Wayne
Amazing volunteers in Fort Wayne are doing it 4NF and have put together a special family night for people in…
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Check out past blogs and news!
Amazing volunteers in Fort Wayne are doing it 4NF and have put together a special family night for people in…
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Protect federal funds for neurofibromatosis by acting now! Fill out the form below to Raise your Voice for NF Research….
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At our October 20th, 2018 symposium, we had the pleasure of learning strategies and skills to improve resiliency and overall…
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At the October 2018 NF Midwest Symposium and iNFo Fair, Jackie Diels, OT, a leading authority on facial neuromuscular retraining…
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Our daughter Janna was diagnosed with neurofibromatosis type 1 when she was five months old. Doctors tell us that it…
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My husband and I had never heard of NF1 until May 2015 when our daughter, Ifunanya or Ify (pronounced “eff-ee”),…
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Which nonprofits have you wanted to help this year? You probably have a list of your favorites! Supporting those meaningful…
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If you’ve been paying any attention to NF research in the last several years you’ll have noticed that in clinical…
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Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…
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Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…
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