News/Blog

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Jean – A Face of NF

Posted By NF Midwest | On May 17th, 2019

I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…

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Danielle & Bernadette – A Face of NF

Posted By NF Midwest | On May 16th, 2019

Growing up I always knew I was different. I had spots all over my body. I actually thought for…

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Eric & Kai – A Face of NF

Posted By NF Midwest | On May 14th, 2019

I have NF type 1. For the most part, my symptoms have been mild, but the most significant challenges I’ve…

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Tim – A Face of NF

Posted By Diana Haberkamp | On May 14th, 2019

I am 64 years old with no prior neurofibromatosis family history and none of my 6 siblings have NF, making…

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Ana – A Face of NF

Posted By Diana Haberkamp | On May 13th, 2019

Ana is 10 years old. She was diagnosed with neurofibromatosis type 2 when she was seven. Her genetic disorder was…

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Maverick – A Face of NF

Posted By NF Midwest | On May 12th, 2019

Maverick is the first in his family to be diagnosed with NF1. He started showing symptoms at 2 months old….

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Karissa- A Face of NF

Posted By NF Midwest | On May 10th, 2019

Hi I’m Karissa, I’m 27 and I have NF1. My story may be a little long, but sometimes that’s the…

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Collin- A Face of NF

Posted By NF Midwest | On May 10th, 2019

Hi, my name is Jean. My son, Collin, was diagnosed with NF1 at the age of 1. He was a…

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Conor- A Face of NF

Posted By NF Midwest | On May 9th, 2019

My little guy’s name is Conor and he is 1 year-old and has been diagnosed with NF Type 1. Conor’s…

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Rory – A Face of NF

Posted By Diana Haberkamp | On May 7th, 2019

Aurorah (Rory), now age 9, was diagnosed with neurofibromatosis type 1 shortly after her sixth birthday. She was born with…

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