News/Blog

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Geri – A Face of NF

Posted By NF Midwest | On May 25th, 2019

I was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…

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Steve – A Face of NF

Posted By NF Midwest | On May 23rd, 2019

I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…

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Taylor – A Face of NF

Posted By Diana Haberkamp | On May 22nd, 2019

I have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…

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Marissa- A Face of NF

Posted By NF Midwest | On May 20th, 2019

Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…

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Rick – A Face of NF

Posted By Diana Haberkamp | On May 19th, 2019

My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…

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Jean – A Face of NF

Posted By NF Midwest | On May 17th, 2019

I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…

Naperville GS Walk4NF Breakfast with New Friends

Posted By Diana Haberkamp | On May 16th, 2019

Ever feel like you don’t get the chance to meet other NF friends and families at Great Steps? Let’s change…

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Danielle & Bernadette – A Face of NF

Posted By NF Midwest | On May 16th, 2019

Growing up I always knew I was different. I had spots all over my body. I actually thought for…

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Eric & Kai – A Face of NF

Posted By NF Midwest | On May 14th, 2019

I have NF type 1. For the most part, my symptoms have been mild, but the most significant challenges I’ve…

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Tim – A Face of NF

Posted By Diana Haberkamp | On May 14th, 2019

I am 64 years old with no prior neurofibromatosis family history and none of my 6 siblings have NF, making…

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