Marissa- A Face of NF
Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
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Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
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My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…
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I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
Read MoreEver feel like you don’t get the chance to meet other NF friends and families at Great Steps? Let’s change…
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Growing up I always knew I was different. I had spots all over my body. I actually thought for…
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I have NF type 1. For the most part, my symptoms have been mild, but the most significant challenges I’ve…
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I am 64 years old with no prior neurofibromatosis family history and none of my 6 siblings have NF, making…
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Ana is 10 years old. She was diagnosed with neurofibromatosis type 2 when she was seven. Her genetic disorder was…
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Maverick is the first in his family to be diagnosed with NF1. He started showing symptoms at 2 months old….
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Hi I’m Karissa, I’m 27 and I have NF1. My story may be a little long, but sometimes that’s the…
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