Ben – A Face of NF
My name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
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My name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
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I was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…
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I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
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I have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…
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Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
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My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…
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I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
Read MoreEver feel like you don’t get the chance to meet other NF friends and families at Great Steps? Let’s change…
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Growing up I always knew I was different. I had spots all over my body. I actually thought for…
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I have NF type 1. For the most part, my symptoms have been mild, but the most significant challenges I’ve…
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