
Camp New Friends 2019
If you have a child with neurofibromatosis, please consider sending them to Camp New Friends. Now is the time to…
Read MoreCheck out past blogs and news!
If you have a child with neurofibromatosis, please consider sending them to Camp New Friends. Now is the time to…
Read MoreProtect federal funds for neurofibromatosis by acting now! Fill out the form below to Raise your Voice for NF Research….
Read MoreThe Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, March 16th, from 10 am…
Read MoreMay is National Neurofibromatosis (NF) Awareness Month (and in particular, May 17th is World NF Awareness Day), so the Fort…
Read MoreAt our October 20th, 2018 symposium, we had the pleasure of learning strategies and skills to improve resiliency and overall…
Read MoreAt the October 2018 NF Midwest Symposium and iNFo Fair, Jackie Diels, OT, a leading authority on facial neuromuscular retraining…
Read MoreOur daughter Janna was diagnosed with neurofibromatosis type 1 when she was five months old. Doctors tell us that it…
Read MoreBecause the neurofibromatosis cause needs New Fighters and young iNFluencers! See photos This January I had the extreme privilege of…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…
Read MoreAbout this Event Get ready for the First Annual Great Steps 4NF Walk in Columbia, Missouri! This community-based event is…
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