2018 Year in Review
Our 2018 financial statement is complete and we’ve taken time to look back at the year in review! It was…
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Check out past blogs and news!
Our 2018 financial statement is complete and we’ve taken time to look back at the year in review! It was…
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Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…
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My name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…
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I joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
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My sixteen-year-old son began getting café au lait spots at two months old. Our pediatrician at the time gave us…
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My STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…
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We had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
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My name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
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I was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…
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I am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
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