Natural History Study of Cutaneous Neurofibromas in People with NF1
John Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
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John Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
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If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
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Insurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…
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Optic Pathway Gliomas are often referred to as OPG and may affect those with neurofibromatosis type1 (NF1). In most cases…
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$25 million has been allocated specifically for the Neurofibromatosis Research Program (NFRP) in the Fiscal Year 2023 Omnibus appropriates bill…
Read MoreWalk4NF Columbia Details Get ready for the annual Columbia Walk4NF! Plus, NF Midwest is celebrating over 40 years as a…
Read MoreNeurofibromatosis Midwest is very excited to have Sarah Selogic join our team as our Care and Outreach Coordinator. Sarah is…
Read MoreWalk4NF Madison Details Get ready for the annual Madison Walk4NF! Plus, NF Midwest is celebrating over 40 years as a…
Read MoreClassrooms that Care is a service-learning program that teaches students and/or educational staff about neurofibromatosis (NF) and allied disorders through…
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Over 200 agencies and organizations such as The United Way, Community Action, and Goodwill just to name a few have…
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