
NF Study of Genetic Mutations
Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
Read MoreCheck out past blogs and news!
Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
Read MoreNF Midwest has awarded three $1,000 post-secondary academic scholarships and one new Distinguished Service Scholarship to four adults affected by…
Read MoreIf you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…
Read MoreKalona is selling her art and plants to support NF1. Her granddaughter has neurofibromatosis and I am trying to help…
Read MoreAn update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…
Read MoreAre you a young adult living with NF and want to make a difference in your community? In addition to…
Read MoreCamp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…
Read MoreCamp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…
Read MoreOnline Harvard study to help teens learn Stress and Symptom Management Skills NOTE: PLEASE CONTACT THE RESEARCHERS DIRECTLY TO PARTICIPATE-NF…
Read MoreIf you’re a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you’re welcome to join our…
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