Spotlight on Hosting a DIY Event: E’s Hulksters
The captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…
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The captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…
Read MoreParents Group meeting for parents of kids with NF1, NF2, or Schwannomatosis. Please register once to attend all future meetings….
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Between 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A…
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January 2020 started the beginning of the Public Health Emergency (PHE) as a response to the increased need for health…
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Join us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…
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I was diagnosed at age 2. I have cafe au laits, bilateral optic gliomas, a few cutaneous neurofibromas, innumerable internal…
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With a few key words and the push of the enter key you can search pretty much any topic you…
Read MoreCamp New Friends is a neurofibromatosis specific camp for ages 7-17. Camp New Friends offers seven days and six nights…
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Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
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February 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
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