Parent’s Group
Parents Group meeting for parents of kids with NF1, NF2, or Schwannomatosis. Please register once to attend all future meetings….
Read MoreParents Group meeting for parents of kids with NF1, NF2, or Schwannomatosis. Please register once to attend all future meetings….
Read MoreBetween 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A…
Read MoreJanuary 2020 started the beginning of the Public Health Emergency (PHE) as a response to the increased need for health…
Read MoreJoin us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…
Read MoreI was diagnosed at age 2. I have cafe au laits, bilateral optic gliomas, a few cutaneous neurofibromas, innumerable internal…
Read MoreWith a few key words and the push of the enter key you can search pretty much any topic you…
Read MoreCamp New Friends is a neurofibromatosis specific camp for ages 7-17. Camp New Friends offers seven days and six nights…
Read MoreStarted in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read MoreFebruary 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
Read MoreJohn Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
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