43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
- Walk4NF
- All Events
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

We Need YOU!

Volunteer to join a committee, the board, work an event, create an event…we have lots of opportunities! Let us know what you like to do!

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Volunteer

Step Forward with your Time & Talents to Fight NF!

NF Midwest and the neurofibromatosis cause needs you!

Looking for a fun team-building event for your co-workers? Form teams and join Walk4NF or sponsor an office fundraiser that brings everyone into the action!
Do you like to raise money for good causes? Offer to recruit corporate sponsors and auction prizes for one of our events.
Do you like the adrenaline rush of pulling everything together? Consider pitching in to help organize a local event.
Do you have a special talent or skill such as (but not limited to!) computer networking, accounting, attorney, photographer, writer, singer, juggler? Tell us your talents, and we may be able to put you to work for the cause!

Everything you do, big or small, will move the neurofibromatosis cause forward.

Volunteer Form

People Are Talking

We thought the symposium was really great. It was really informative and was great to meet other families. Thank you for specifically introducing us to the couple from Tinley Park. We also had a chance to talk with some of the doctors during the lunch period and that was really helpful as well. …. … we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it's all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. …I also really liked the check presentations! How great to see the money/research going straight into the hands of the doctors.

- Symposium Comments from Sue

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.