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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

Events Search and Views Navigation

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  • Family Tee Up 4NF at Topgolf
    Sep 30
    Featured 1:00 pm - 4:00 pm

    Family Tee Up 4NF at Topgolf

  • Kentucky Support Group Meeting March 16th
    Mar 16
    10:00 am - 12:00 pm

    Kentucky Support Group Meeting March 16th

  • Great Steps Walk 4NF Missouri
    May 4
    10:00 am - 1:30 pm

    Great Steps Walk 4NF Missouri

  • Fort Wayne, IN  –  NF Family Fun Night at the Ballpark
    May 17
    7:05 pm

    Fort Wayne, IN  –  NF Family Fun Night at the Ballpark

  • GS4NF in Madison, WI
    May 18
    8:30 am - 12:30 pm

    GS4NF in Madison, WI

  • Naperville GS Walk4NF Breakfast with New Friends
    Jun 1
    8:00 am - 8:30 am

    Naperville GS Walk4NF Breakfast with New Friends

  • GS4NF in Naperville, IL
    Jun 1
    8:30 am - 12:30 pm

    GS4NF in Naperville, IL

  • Smiles for Sarah White Sox Day!
    Jun 30
    1:00 pm - 5:00 pm

    Smiles for Sarah White Sox Day!

  • Kentucky NF Support at the Thomas Family Farm July 2019
    Jul 13
    12:00 pm - 4:00 pm

    Kentucky NF Support at the Thomas Family Farm July 2019

  • Golf Charity Open
    Sep 9
    11:00 am - 5:00 pm

    Golf Charity Open

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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