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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Today
  • September 2018

  • Sun 30
    Featured September 30, 2018 | 1:00 pm - 4:00 pm CDT

    Family Tee Up 4NF at Topgolf

    Topgolf Naperville 3211 Odyssey Ct, Naperville, IL, United States

    Please join us for an afternoon of  family, new friends, food, fun, raffles, competition and a great cause! Whether you're...

  • March 2019

  • Sat 16
    March 16, 2019 | 10:00 am - 12:00 pm EDT

    Kentucky Support Group Meeting March 16th

    Kentucky Clinic - University of Kentucky 740 S. Limestone, 4th floor, Wing D, Conference Room J-467, Lexington, KY, United States

    The Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, March 16th, from 10 am...

  • May 2019

  • Sat 4
    May 4, 2019 | 10:00 am - 1:30 pm CDT

    Great Steps Walk 4NF Missouri

    Peace Park, Columbia, MO 401 S 9th St, Columbia, MO, United States

    About this Event Get ready for the First Annual Great Steps 4NF Walk in Columbia, Missouri! This community-based event is...

  • Fri 17
    May 17, 2019 | 7:05 pm EDT

    Fort Wayne, IN  –  NF Family Fun Night at the Ballpark

    Parkview Field 1301 Ewing St, Fort Wayne, IN, United States

    May is National Neurofibromatosis (NF) Awareness Month (and in particular, May 17th is World NF Awareness Day), so the Fort...

  • Sat 18
    May 18, 2019 | 8:30 am - 12:30 pm CDT

    GS4NF in Madison, WI

    Capital Brewery 7734 Terrace Avenue , Middleton, WI, United States

    About this Event Get ready for the Madison Great Steps Neurofibromatosis Walk starting in the garden at Capital Brewery in Middleton, Wisconsin. Register...

  • June 2019

  • Sat 1
    June 1, 2019 | 8:00 am - 8:30 am CDT

    Naperville GS Walk4NF Breakfast with New Friends

    Naperville Riverwalk Naperville, IL, United States

    Ever feel like you don't get the chance to meet other NF friends and families at Great Steps? Let’s change...

  • Sat 1
    June 1, 2019 | 8:30 am - 12:30 pm CDT

    GS4NF in Naperville, IL

    Naperville Riverwalk 912 Honorary Sindt Memorial Ct, Naperville, IL, United States

    About this Event Get ready for the 19th Annual Naperville Great Steps Neurofibromatosis Walk, the largest walk and party in the park for NF...

  • Sun 30
    June 30, 2019 | 1:00 pm - 5:00 pm CDT

    Smiles for Sarah White Sox Day!

    Guranteed Rate Field 333 West 35th Street, Chicago, IL, United States

    Join the Panozzo Family for a Day at the Ball field to benefit the Ann and Robert H Lurie Children's...

  • July 2019

  • Sat 13
    July 13, 2019 | 12:00 pm - 4:00 pm EDT

    Kentucky NF Support at the Thomas Family Farm July 2019

    The Thomas Family Farm 2515 New Glendale Rd, Elizabethtown, KY, United States

    Please join the Kentucky NF Support Group for an afternoon of fun, food, and friendship at the Thomas family farm...

  • September 2019

  • Mon 9
    September 9, 2019 | 11:00 am - 5:00 pm CDT

    Golf Charity Open

    Ravinia Green Country Club

    We are excited to have our inaugural golf fundraising event hosted by Ravinia Green Country Club on Monday, September 9,...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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