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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Today
  • June 2022

  • Sat 4
    June 4, 2022 | 10:00 am - 1:00 pm CDT

    Walk4NF Naperville, IL

    Walk4NF Naperville Details Get ready for the 20th IN-PERSON Naperville Walk4NF (also known as Great Steps4NF), the largest walk and party...

  • July 2022

  • Sun 10
    July 10, 2022 - July 16, 2022

    Camp New Friends 2022

    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    July 10-July 16, 2022 for all July 8-July 16, 2022 for teens (optional) Register and learn more at www.brainycamps.com/camps/neurofibromatosis.html. NF...

  • September 2022

  • Sat 3
    September 3, 2022 | 10:00 am - 1:00 pm CDT

    Walk4NF Indianapolis

    White River State Park 801 W Washington Street, Indianapolis, IN, United States

    Walk4NF Indianapolis Details Get ready for the Indianapolis Walk4NF (also known as Great Steps4NF)! Plus, NF Midwest is celebrating 40 years...

  • Sat 24
    September 24, 2022 | 12:00 pm - 10:00 pm CDT

    SamJam Music & Brewfest

    Macoupin Fairgrounds 21368 Rte. 4, Carlinville, IL, United States

    There's something for everyone at SamJam! 10 Hours of live music to benefit Neurofibromatosis (NF) featuring folk, rock, progressive bluegrass,...

  • December 2022

  • Thu 8
    December 8, 2022 | 8:00 pm - 9:00 pm CST

    Discussion About Social Skills & Executive Functioning (Monthly Parent’s Group)

    Online

    Register or Join Do you have kids with NF1, NF2-SWN, or Schwannomatosis? Whether they're grown or still young, join us...

  • January 2023

  • Mon 2
    January 2, 2023 | 8:00 am - January 6, 2023 | 5:00 pm CST

    NF Young Adult Leadership Program

    Are you a young adult living with NF and want to make a difference in your community? In addition to...

  • Tue 17
    January 17, 2023 | 6:00 pm - 7:00 pm CST

    Information Session about Classrooms That Care

    Classrooms that Care is a service-learning program that teaches students and/or educational staff about neurofibromatosis (NF) and allied disorders through...

  • March 2023

  • Thu 9
    March 9, 2023 | 8:00 pm - 9:00 pm CST

    Parent’s Group

    Parents Group meeting for parents of kids with NF1, NF2, or Schwannomatosis. Please register once to attend all future meetings....

  • May 2023

  • Sat 13
    May 13, 2023 | 9:00 am - 1:00 pm CDT

    2023 Walk4NF Madison, WI

    Capital Brewery 7734 Terrace Avenue , Middleton, WI, United States

    Walk4NF Madison Details Get ready for the annual Madison Walk4NF!  Plus, NF Midwest is celebrating over 40 years as a...

  • Sat 20
    May 20, 2023 | 9:00 am - 1:00 pm CDT

    2023 Walk4NF Indianapolis, IN

    White River State Park 801 W Washington Street, Indianapolis, IN, United States

    Walk4NF Indianapolis Details Get ready for the annual Indianapolis Walk4NF!  Plus, NF Midwest is celebrating over 40 years as a...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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