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43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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February 2026
Neurofibromatosis Type 1 (NF1) Plexiform Neurofibromas in Adults: A Closer Look at Koselugo (selumetinib)

February 17 | 7:00 pm - 8:00 pm CST

Join us as Dr. Jacob Henderson presents a more in-depth look at Koselugo for the treatment of plexiform tumors in...
March 2026
Lexington, KY – Community Conversation

March 14 | 8:30 am - 1:00 pm CDT

Shriner Children's Hospital 110 Conn Terrace, Lexington, Kentucky

Listen and learn together, with experts and each other. The morning will include: Professionals attending the event include: Join us...
July 2026
Brainy Ridge Camp NF

July 19 | 8:00 am - July 25 | 5:00 pm CDT

Blue Ridge School St. George, Virginia, United States

A 7-day, 6-night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2, and Schwannomatosis. Medical...

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Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

February 2026

March 2026

July 2026

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