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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Events

Today
  • June 2025

  • Fri 20

    Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation

    June 20, 2025 | 6:00 pm - 8:00 pm CDT
    International Museum of Surgical Sciences 1524 North Lake Shore Dr, Chicago, Illinois

    Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation is a powerful exhibition featuring nine works of printmaking, drawing,...

    Free
  • July 2025

  • Thu 31

    NF1 PN Educational Event hosted by Alexion

    July 31, 2025 | 6:00 pm CDT

    Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...

  • August 2025

  • Fri 1

    Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation

    August 1, 2025 | 6:00 pm - 8:00 pm CDT
    International Museum of Surgical Sciences 1524 North Lake Shore Dr, Chicago, Illinois

    Join NF Midwest, NF physicians, the NF community, and others in celebrating the work of artist Rachel Mindrup and the...

    FREE
  • Sat 2

    NF1 Family Symposium at Lurie Children’s Hospital

    August 2, 2025 | 8:30 am - 2:00 pm CDT
    Ann & Robert H Lurie Children's Hospital 225 E Chicago Ave, Chicago, Illinois

    Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP's, and Social Work in NF.

  • Thu 21

    NF1 PN Educational Event hosted by Alexion

    August 21, 2025 | 9:00 pm CDT

    Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...

  • September 2025

  • Sun 21

    2025 North Shore Century Ride

    Featured September 21, 2025 | 6:00 am - 6:00 pm CDT

    A Collaboration with Children's Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join the NF Midwest...

  • October 2025

  • Wed 1

    Champions of the Fall

    October 1, 2025 | 8:00 am - November 30, 2025 | 6:00 pm CDT

    Two Months. One Champion. Rally Your Crew! A maximum of five individual or crews may sign up for NF Midwest's...

  • Sat 25

    2025 iNFo Fair

    Featured October 25, 2025 | 8:00 am - 4:00 pm CDT

    The theme this year is being "Be Proactive, Be Informed, Be Heard!" Join us for an all-day iNFo Fair in...

  • Sun 26

    $500 Wednesday Windfall

    Featured October 26, 2025 | 6:00 pm - November 26, 2025 | 6:00 pm CDT

    🎁 Get ready for a little holiday windfall! On Wednesday, November 26th—just before Thanksgiving, Black Friday, and Cyber Monday—one lucky...

  • Wed 29

    Transitioning to Adult Care

    October 29, 2025 | 7:00 pm - 8:00 pm CDT

    Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share information about transitioning to adult care. Objectives: This is a virtual...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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