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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
    -Myshell

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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Today
  • August 2024

  • Sat 3
    Featured August 3, 2024 | 9:00 am - 2:00 pm EDT

    NF Patient Education Symposium at the University of Kentucky

    Clarion Hotel Conference Center 1950 Newtown Pike, Lexington, Kentucky, United States

    Join us for an informative symposium specifically designed for neurofibromatosis patients and their families. A breakfast buffet will be provided....

    Free
  • September 2024

  • Sun 15
    Featured September 15, 2024

    2024 North Shore Century Ride

    A Collaboration with Children's Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join the NF Midwest...

  • October 2024

  • Tue 1
    Featured October 1, 2024 | 8:00 am - December 31, 2024 | 6:00 pm CDT

    Champions of the Fall

    Three Months. One Champion. Rally Your Crew! NF Midwest has a new fall fundraising and awareness campaign kicking off on...

  • Wed 16
    October 16, 2024 | 7:00 pm - 9:00 pm CDT

    Caregivers Need Care, Too

    Free Educational Event At Maggiano’s Little Italy240 Oakbrook CenterOak Brook, Illinois 60523 Managing NF1 PN can be complex! At Alexion,...

    FREE
  • Thu 24
    October 24, 2024 | 6:30 pm - 7:30 pm CDT NF Midwest Parent Group Chat

    Monthly NF Midwest Parent Group Chat

    Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing...

    Free
  • Sat 26
    Featured October 26, 2024 | 8:00 am - 4:00 pm CDT

    2024 iNFo Fair

    This Year's Focus Will Be On Research! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October...

  • November 2024

  • Tue 5
    November 5, 2024 | 8:00 am - November 27, 2024 | 6:00 pm CST

    Windfall Wednesday

    You'll be spending money on Black Friday, Cyber Monday, Giving Tuesday, and throughout the season of gift-giving. Now is your...

  • January 2025

  • Tue 28
    January 28, 2025 | 6:00 pm - 7:00 pm CST

    Meet Camp NF

    Learn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is...

  • Tue 28
    January 28, 2025 | 8:00 pm - 9:00 pm CST

    NF1 PN Educational Event hosted by Alexion

    Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...

  • February 2025

  • Tue 11
    February 11, 2025 | 8:00 pm - 9:00 pm CST

    NF1 PN Educational Event hosted by Alexion

    Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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