Meet Camp NF
Learn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is...
10 events found.
Events
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NF1 PN Educational Event hosted by Alexion
Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...
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NF1 PN Educational Event hosted by Alexion
Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...
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Clinical Trials for Treating Pain in Schwannomatosis
FeaturedJoin us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We'll...
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All About NF1, PN, and a Treatment Option
Please refer to the flyer for information. Presented by Alexion Pharmaceuticals, Inc.
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SamJam Finale!
The Rustic Venues 24720 N. Standard City Road, Girard, Illinois, United StatesSamJam Benefit Concert Aims to Reach $100,000 Milestone for NF Research Date: Saturday, April 26, 2025Time: 5:30 PM - LateLocation:...
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Meet the MEKs: A Power Hour 4NF
Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from...
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2025 Walk4NF Madison, WI
Capital Brewery 7734 Terrace Avenue , Middleton, WI, United StatesWalk4NF Madison Details Get ready for the annual Madison Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating...
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Meet MEK Users: A Power Hour 4NF
Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want...
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2025 Walk4NF Columbia, MO
Stephens Lake Park, Columbia, MO 2001 E Broadway, Columbia, MO, United StatesWalk4NF Columbia Details Get ready for the annual Columbia Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating...
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