• About Us
    • Mission/History
    • Leadership/Staff
    • Financials and FEIN
    • Privacy Policy
  • Shop
  • Contact Us
  • Give
43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

  • What We Do

    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
    -Myshell

    • Clinics
    • Raising Awareness
    • Research
    • Education
    • Support
    • Scholarships
    • Young Adult Leadership
    • Testimonials
  • Get Involved

    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

    • Join the Community
    • DIY Events
    • Participate in Research
    • Ways to Give
    • Raising Awareness
    • Walk4NF Events
    • Volunteer
    • Join the Dream Team
    • Share Your Story
    • Join the Board
  • Learn

    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

    • Find A Doctor
    • What is NF?
    • NF Type 1
    • NF2-SWN
    • Other SWN
    • Be iNFormed Database
    • Resources
    • iNFo Fair
    • Faces of NF
    • Research Trials and Studies
  • Events

    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

    • Walk4NF
    • All Events
  • News/Blog

    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

    • Research
    • Education
    • Clinics/Care
    • Events
    • Giving
    • Faces of NF
    • Past Newsletters
    • Behind The Scenes
  • Support
10 events found.

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
  • Photo
Today
  • May 2018

  • Fri 18
    May 18, 2018 | 7:00 pm - 11:00 pm EDT

    Ft. Wayne, IN Family Fun Night at the Ballpark!

    Parkview Field 1301 Ewing St, Fort Wayne, IN, United States

    JOIN US FOR A NIGHT OF FAMILY FUN AND HELP SUPPORT NEUROFIBROMATOSIS WHEN: May 18, 2018 WHERE: PARKVIEW FIELD Fort...

  • June 2018

  • Sat 2
    June 2, 2018 | 8:00 am - 8:30 am CDT

    Naperville GS Walk4NF Breakfast with New Friends

    Naperville Riverwalk Naperville, IL, United States

    Ever feel like you don't get the chance to meet other NF friends and families at Great Steps? Let’s change...

  • Sun 3
    June 3, 2018 | 1:00 pm - 5:00 pm CDT

    Smiles for Sarah White Sox Day!

    Guranteed Rate Field 333 West 35th Street, Chicago, IL, United States

    Join the Panozzo Family for a Day at the Ball field to benefit the Ann and Robert H Lurie Children's...

  • Wed 13
    neurofibromatosis, adults, nf1, nf2, schwannomatosis
    June 13, 2018 | 7:00 pm - 10:00 pm CDT

    Adult Game Night (Chicago)

    On Wednesday, June 13th there will be another Adult Game Night in Chicago hosted by Ilene and Emily Bluestein. The...

  • Tue 19
    June 19, 2018 | 4:00 pm - 8:00 pm CDT

    Neighbor Night (Marissa’s Mob #DoIt4NF)

    Lewis Park - McFarland, WI 5012 Highland Dr, McFarland, WI, United States

    The Fillmore Family (GSWalk4NF Wisconsin/Madison team) invite you to join them at their annual Neighbor Nite.  This year part of...

  • Sat 30
    June 30, 2018 | 2:00 pm - 6:00 pm EDT

    Kentucky NF Support at the Thomas Family Farm

    The Thomas Family Farm 2515 New Glendale Rd, Elizabethtown, KY, United States

    Please join the Kentucky NF Support Group for an afternoon of fun, food, and friendship at the Thomas family farm...

  • July 2018

  • Sun 29
    July 29, 2018 | 11:00 am - 7:00 pm CDT

    Neighbor Day (Marissa’s Mob #DoIt4NF)

    Lewis Park - McFarland, WI 5012 Highland Dr, McFarland, WI, United States

    The Fillmore Family (GSWalk4NF Wisconsin/Madison team) invite you to join them at their annual Neighbor Day. This year part of...

  • August 2018

  • Sat 4
    August 4, 2018 - August 10, 2018

    Camp New Friends

    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    Do you have a child interested in attending Camp New Friends, a camp for kids with neurofibromatosis? If so, NF...

  • September 2018

  • Sun 30
    Featured September 30, 2018 | 1:00 pm - 4:00 pm CDT

    Family Tee Up 4NF at Topgolf

    Topgolf Naperville 3211 Odyssey Ct, Naperville, IL, United States

    Please join us for an afternoon of  family, new friends, food, fun, raffles, competition and a great cause! Whether you're...

  • March 2019

  • Sat 16
    March 16, 2019 | 10:00 am - 12:00 pm EDT

    Kentucky Support Group Meeting March 16th

    Kentucky Clinic - University of Kentucky 740 S. Limestone, 4th floor, Wing D, Conference Room J-467, Lexington, KY, United States

    The Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, March 16th, from 10 am...

  • Previous Events
  • Today
  • Next Events
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

Get the Latest NF News & Updates

Sign up to be notified of new posts to our website.

  • About NF Midwest
    • Mission/History
    • Leadership/Staff
    • Financials
    • Privacy Policy
  • Ways to Help
    • Donate
    • NF Midwest Walks4NF
    • Ways to Give
    • Shop
  • News/Blog
  • Past Newsletters
  • Email for Support
  • Join the Community
  • Participate in Research
  • Raising Awareness
  • Volunteer
  • What is NF?
  • NF Type 1
  • NF2-Related Schwannomatosis
  • Schwannomatosis
  • Be iNFormed Database
  • Research Trials and Studies
  • Resources
  • Resource Submission
High Impact Research Match Great Non Profits Badge Candid Gold Seal of Transparency 2025 Community Health Charities Combined Federal Campaign NF Collective Member
Donate

© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

fb-share-icon
Visit Us
Follow Me
Tweet
Share