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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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4 events found.

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Today
  • August 2017

  • Sat 12
    August 12, 2017 | 10:00 am - 12:00 pm EDT

    Kentucky Support Group Meeting August 12th

    Cambridge Golf Course Restaurant 1034 Beacon Hill, Evansville, IN, United States

    The Kentucky NF Midwest group is holding an NF support group meeting this Saturday, August 12th, 2017, from 10 am...

  • Sat 19
    August 19, 2017 | 9:00 am - 12:30 pm CDT

    GS4NF in Indianapolis, IN

    Hummel Park 1500 S Center St, in , Plainfield, IN, United States

    About this Event Join us for the 2nd Great Steps Neurofibromatosis Walk in Indianapolis (Plainfield), IN! We have a great committee working...

  • September 2017

  • Sun 10
    Featured September 10, 2017 | 1:00 pm - 4:00 pm CDT

    Tee Up 4NF at Topgolf

    Topgolf Naperville 3211 Odyssey Ct, Naperville, IL, United States

    Please join us for an afternoon of food, fun, and competition! Whether you’re an experienced golfer or new to the...

  • Sat 16
    September 16, 2017 | 10:00 am - 12:00 pm EDT

    Kentucky Support Group Meeting September 16th

    Cambridge Golf Course Restaurant 1034 Beacon Hill, Evansville, IN, United States

    The Kentucky NF Midwest group is holding an NF support group meeting this Saturday, September 16th, 2017, from 10 am...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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