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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

Events Search and Views Navigation

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Events

Today
  • July 2024

  • Wed 31

    2024 Walk4NF Virtual Challenge

    January 1, 2024 | 12:00 am - September 30, 2024 | 12:00 am CDT
    Wherever you live! Whenever you want until Sept. 30, 2024

    Walk4NF Virtual Challenge Details Get ready for this year's Virtual Challenge! Plus, NF Midwest is celebrating over 42 years as...

  • August 2024

  • Thu 1

    NF1 PN Educational Virtual Event-Care Givers Need Care, Too

    August 1, 2024 | 6:00 pm CDT

    Care givers need care, too. At this event attendees will gain a new perspective on caring for a child with...

    Free
  • Sat 3

    NF Patient Education Symposium at the University of Kentucky

    Featured August 3, 2024 | 9:00 am - 2:00 pm EDT
    Clarion Hotel Conference Center 1950 Newtown Pike, Lexington, Kentucky, United States

    Join us for an informative symposium specifically designed for neurofibromatosis patients and their families. A breakfast buffet will be provided....

    Free
  • Thu 22

    Monthly NF Midwest Parent Group Chat

    August 22, 2024 | 6:30 pm - 7:30 pm CDT NF Midwest Parent Group Chat

    Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing...

    Free
  • September 2024

  • Sun 15

    2024 North Shore Century Ride

    Featured September 15, 2024

    A Collaboration with Children's Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join the NF Midwest...

  • October 2024

  • Tue 1

    Champions of the Fall

    Featured October 1, 2024 | 8:00 am - December 31, 2024 | 6:00 pm CDT

    Three Months. One Champion. Rally Your Crew! NF Midwest has a new fall fundraising and awareness campaign kicking off on...

  • Wed 16

    Caregivers Need Care, Too

    October 16, 2024 | 7:00 pm - 9:00 pm CDT

    Free Educational Event At Maggiano’s Little Italy240 Oakbrook CenterOak Brook, Illinois 60523 Managing NF1 PN can be complex! At Alexion,...

    FREE
  • Sat 26

    2024 iNFo Fair

    Featured October 26, 2024 | 8:00 am - 4:00 pm CDT

    This Year's Focus Will Be On Research! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October...

  • November 2024

  • Tue 5

    Windfall Wednesday

    November 5, 2024 | 8:00 am - November 27, 2024 | 6:00 pm CST

    You'll be spending money on Black Friday, Cyber Monday, Giving Tuesday, and throughout the season of gift-giving. Now is your...

  • January 2025

  • Tue 28

    Meet Camp NF

    January 28, 2025 | 6:00 pm - 7:00 pm CST

    Learn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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