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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
    -Myshell

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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

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    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

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Events

Today
  • May 2024

  • Sun 12

    2024 Walk4NF Virtual Challenge

    January 1, 2024 | 12:00 am - September 30, 2024 | 12:00 am CDT
    Wherever you live! Whenever you want until Sept. 30, 2024

    Walk4NF Virtual Challenge Details Get ready for this year's Virtual Challenge! Plus, NF Midwest is celebrating over 42 years as...

  • Sat 18

    2024 Walk4NF Indianapolis, IN

    May 18, 2024 | 9:00 am - 1:00 pm CDT
    White River State Park 801 W Washington Street, Indianapolis, IN, United States

    Walk4NF Indianapolis Details Get ready for the annual Indianapolis Walk4NF!  Plus, NF Midwest is celebrating over 42 years as a...

  • Sat 18

    2025 Walk4NF Indianapolis, IN

    May 18, 2024 | 9:00 am - 1:00 pm CDT
    White River State Park 801 W Washington Street, Indianapolis, IN, United States

    Walk4NF Indianapolis Details Get ready for the annual Indianapolis Walk4NF and support those with neurofibromatosis! Plus, NF Midwest is celebrating...

  • Tue 21

    NF1 PN Educational Event/An introduction to managing NF1 PN Educational Event/

    May 21, 2024 | 7:00 pm - 8:00 pm CDT

    Get the basics of treating NF1 PN from an Alexion Patient Education Manager. Hear about support options available to you...

    Free
  • Thu 23

    Monthly NF Midwest Parent Group Chat

    May 23, 2024 | 6:30 pm - 7:30 pm CDT NF Midwest Parent Group Chat

    Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing...

    Free
  • June 2024

  • Sat 8

    2024 Walk4NF Naperville, IL

    June 8, 2024 | 8:30 am - 1:00 pm CDT
    Naperville Riverwalk 912 Honorary Sindt Memorial Ct, Naperville, IL, United States

    Walk4NF Naperville Details Get ready for the 23rd Naperville Walk4NF-the largest walk and party in the park for NF in...

  • July 2024

  • Sun 21

    Brainy Ridge Camp NF

    July 21, 2024 | 8:00 am - July 27, 2024 | 5:00 pm CDT
    Blue Ridge School St. George, Virginia, United States

    A 7 day, 6 night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2 and...

  • August 2024

  • Thu 1

    NF1 PN Educational Virtual Event-Care Givers Need Care, Too

    August 1, 2024 | 6:00 pm CDT

    Care givers need care, too. At this event attendees will gain a new perspective on caring for a child with...

    Free
  • Sat 3

    NF Patient Education Symposium at the University of Kentucky

    Featured August 3, 2024 | 9:00 am - 2:00 pm EDT
    Clarion Hotel Conference Center 1950 Newtown Pike, Lexington, Kentucky, United States

    Join us for an informative symposium specifically designed for neurofibromatosis patients and their families. A breakfast buffet will be provided....

    Free
  • September 2024

  • Sun 15

    2024 North Shore Century Ride

    Featured September 15, 2024

    A Collaboration with Children's Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. Join the NF Midwest...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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