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43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

DIY Fundraisers

  1. Events
  2. DIY Fundraisers

Events Search and Views Navigation

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Events

Today
  • June 2018

  • Tue 19

    Neighbor Night (Marissa’s Mob #DoIt4NF)

    June 19, 2018 | 4:00 pm - 8:00 pm CDT
    Lewis Park - McFarland, WI 5012 Highland Dr, McFarland, WI, United States

    The Fillmore Family (GSWalk4NF Wisconsin/Madison team) invite you to join them at their annual Neighbor Nite.  This year part of...

  • Sat 30

    Kentucky NF Support at the Thomas Family Farm

    June 30, 2018 | 2:00 pm - 6:00 pm EDT
    The Thomas Family Farm 2515 New Glendale Rd, Elizabethtown, KY, United States

    Please join the Kentucky NF Support Group for an afternoon of fun, food, and friendship at the Thomas family farm...

  • July 2018

  • Sun 29

    Neighbor Day (Marissa’s Mob #DoIt4NF)

    July 29, 2018 | 11:00 am - 7:00 pm CDT
    Lewis Park - McFarland, WI 5012 Highland Dr, McFarland, WI, United States

    The Fillmore Family (GSWalk4NF Wisconsin/Madison team) invite you to join them at their annual Neighbor Day. This year part of...

  • June 2019

  • Sun 30

    Smiles for Sarah White Sox Day!

    June 30, 2019 | 1:00 pm - 5:00 pm CDT
    Guranteed Rate Field 333 West 35th Street, Chicago, IL, United States

    Join the Panozzo Family for a Day at the Ball field to benefit the Ann and Robert H Lurie Children's...

  • July 2019

  • Sat 13

    Kentucky NF Support at the Thomas Family Farm July 2019

    July 13, 2019 | 12:00 pm - 4:00 pm EDT
    The Thomas Family Farm 2515 New Glendale Rd, Elizabethtown, KY, United States

    Please join the Kentucky NF Support Group for an afternoon of fun, food, and friendship at the Thomas family farm...

  • September 2019

  • Mon 9

    Golf Charity Open

    September 9, 2019 | 11:00 am - 5:00 pm CDT
    Ravinia Green Country Club

    We are excited to have our inaugural golf fundraising event hosted by Ravinia Green Country Club on Monday, September 9,...

  • July 2021

  • Wed 7

    Hand to Heart Art 4NF

    July 7, 2021 - September 2, 2021

    Kalona is selling her art and plants to support NF1. Her granddaughter has neurofibromatosis and I am trying to help...

  • April 2022

  • Sat 30

    1st Annual E’s Hulkster Trivia Night

    April 30, 2022 | 7:30 pm - 8:30 pm CDT
    East Annex 801 E. Switzler, Centralia, MO, United States

    Doors open at 6:30pm Entry deadline: April 25, 2022 Team (6-8 people): $80. Need a team? $15 and we'll hook...

  • September 2022

  • Sat 24

    SamJam Music & Brewfest

    September 24, 2022 | 12:00 pm - 10:00 pm CDT
    Macoupin Fairgrounds 21368 Rte. 4, Carlinville, IL, United States

    There's something for everyone at SamJam! 10 Hours of live music to benefit Neurofibromatosis (NF) featuring folk, rock, progressive bluegrass,...

  • November 2023

  • Sat 18

    SamJam’s BBQ & Boogie

    November 18, 2023 | 5:00 pm - 10:00 pm CST
    The Rustic Venues 24720 N. Standard City Road, Girard, Illinois, United States

    The music and fun is in November this year! Support the ongoing efforts for NF research and support services for...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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