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Neurofibromatosis Midwest

Neurofibromatosis Midwest

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    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

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10 events found.

NF Get Togethers

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  • May 2019

  • Fri 17

    Fort Wayne, IN  –  NF Family Fun Night at the Ballpark

    May 17, 2019 | 7:05 pm EDT
    Parkview Field 1301 Ewing St, Fort Wayne, IN, United States

    May is National Neurofibromatosis (NF) Awareness Month (and in particular, May 17th is World NF Awareness Day), so the Fort...

  • June 2019

  • Sat 1

    Naperville GS Walk4NF Breakfast with New Friends

    June 1, 2019 | 8:00 am - 8:30 am CDT
    Naperville Riverwalk Naperville, IL, United States

    Ever feel like you don't get the chance to meet other NF friends and families at Great Steps? Let’s change...

  • Sun 30

    Smiles for Sarah White Sox Day!

    June 30, 2019 | 1:00 pm - 5:00 pm CDT
    Guranteed Rate Field 333 West 35th Street, Chicago, IL, United States

    Join the Panozzo Family for a Day at the Ball field to benefit the Ann and Robert H Lurie Children's...

  • July 2019

  • Sat 13

    Kentucky NF Support at the Thomas Family Farm July 2019

    July 13, 2019 | 12:00 pm - 4:00 pm EDT
    The Thomas Family Farm 2515 New Glendale Rd, Elizabethtown, KY, United States

    Please join the Kentucky NF Support Group for an afternoon of fun, food, and friendship at the Thomas family farm...

  • November 2019

  • Sat 9

    2019 Symposium and iNFo Fair

    Featured November 9, 2019 | 8:00 am - 4:30 pm CST
    Northern Illinois University Building 5555 Trillium Boulevard, Hoffman Estates, IL, United States

    be iNFormed! Join us for an exciting day in which you will learn from the experts and share experiences about...

  • July 2020

  • Mon 20

    Camp New Friends 2020 Virtual Camp

    July 20, 2020 - July 24, 2020
    Blue Ridge School 273 Mayo Drive, St. George, VA, United States

    Do you have a child interested in attending Camp New Friends, a camp for kids with neurofibromatosis? If so, NF...

  • April 2021

  • Thu 8

    Parent Group Meeting with Speech Discussion

    April 8, 2021 | 8:00 pm - 9:00 pm CDT
    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • May 2021

  • Wed 5

    NF Power Hour-Meet the Docs from Indiana University

    May 5, 2021 | 6:30 pm - 7:30 pm CDT
    Online

    Join NF Midwest for a Q&A and casual conversation with NF physicians from Indiana University and Riley Hospital for Children....

  • Thu 13

    Parent Group Meeting with Genetics Discussion

    May 13, 2021 | 8:00 pm - 9:00 pm CDT
    Online

    If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...

  • Tue 18

    NF Open Chat

    May 18, 2021 | 6:30 pm - 7:30 pm CDT
    Online

    A casual online get together to chat, catch up, share experiences and resources, and ask questions within the NF Midwest...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

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