43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

NF Get Togethers

July 2020
Camp New Friends 2020 Virtual Camp

July 20, 2020 - July 24, 2020

Blue Ridge School 273 Mayo Drive, St. George, VA, United States

Do you have a child interested in attending Camp New Friends, a camp for kids with neurofibromatosis? If so, NF...
April 2021
Parent Group Meeting with Speech Discussion

April 8, 2021 | 8:00 pm - 9:00 pm CDT

Online

If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...
May 2021
NF Power Hour-Meet the Docs from Indiana University

May 5, 2021 | 6:30 pm - 7:30 pm CDT

Online

Join NF Midwest for a Q&A and casual conversation with NF physicians from Indiana University and Riley Hospital for Children....
Parent Group Meeting with Genetics Discussion

May 13, 2021 | 8:00 pm - 9:00 pm CDT

Online

If you're a parent of a child with neurofibromatosis type 1, type 2, or schwannomatosis you're welcome to join our...
NF Open Chat

May 18, 2021 | 6:30 pm - 7:30 pm CDT

Online

A casual online get together to chat, catch up, share experiences and resources, and ask questions within the NF Midwest...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.