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Neurofibromatosis Midwest

Neurofibromatosis Midwest

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10 events found.

Educational Events

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  2. Educational Events

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Events

Today
  • March 2025

  • Thu 27

    All About NF1, PN, and a Treatment Option

    March 27, 2025 | 8:00 pm - 9:00 pm CDT

    Please refer to the flyer for information. Presented by Alexion Pharmaceuticals, Inc.

  • April 2025

  • Tue 29

    Meet the MEKs: A Power Hour 4NF

    April 29, 2025 | 5:30 pm CDT

    Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from...

  • May 2025

  • Tue 27

    Meet MEK Users: A Power Hour 4NF

    May 27, 2025 | 5:30 pm CDT

    Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want...

  • July 2025

  • Thu 31

    NF1 PN Educational Event hosted by Alexion

    July 31, 2025 | 6:00 pm CDT

    Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...

  • August 2025

  • Sat 2

    NF1 Family Symposium at Lurie Children’s Hospital

    August 2, 2025 | 8:30 am - 2:00 pm CDT
    Ann & Robert H Lurie Children's Hospital 225 E Chicago Ave, Chicago, Illinois

    Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP's, and Social Work in NF.

  • Thu 21

    NF1 PN Educational Event hosted by Alexion

    August 21, 2025 | 9:00 pm CDT

    Managing NF1 PN can be complex!Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with plexiform...

  • October 2025

  • Sat 25

    2025 iNFo Fair

    Featured October 25, 2025 | 8:00 am - 4:00 pm CDT

    The theme this year is being "Be Proactive, Be Informed, Be Heard!" Join us for an all-day iNFo Fair in...

  • Wed 29

    Transitioning to Adult Care

    October 29, 2025 | 7:00 pm - 8:00 pm CDT

    Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share information about transitioning to adult care. Objectives: This is a virtual...

  • December 2025

  • Wed 10

    Navigating Stress and Cultivating Wellness

    December 10, 2025 | 7:00 pm - 8:00 pm CST

    Gina Friesl, Patient Education Manager from Alexion Pharmaceuticals, will share information about Navigating Stress and Cultivating Wellness. Objectives: This is a...

  • January 2026

  • Tue 13

    Discovering possibilities for neurofibromatosis type 1 (NF1) plexiform neurofibromas in adults.

    January 13 | 7:00 pm - 8:00 pm CST

    Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share discovering possibilities for neurofibromatosis type 1 (NF1) plexiform neurofibromas in...

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