43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Camp

July 2022
Camp New Friends 2022

July 10, 2022 - July 16, 2022

Blue Ridge School 273 Mayo Drive, St. George, VA, United States

July 10-July 16, 2022 for all July 8-July 16, 2022 for teens (optional) Register and learn more at www.brainycamps.com/camps/neurofibromatosis.html. NF...
July 2023
Camp New Friends 2023

July 16, 2023 - July 22, 2023

Blue Ridge School 273 Mayo Drive, St. George, VA, United States

Camp New Friends is a neurofibromatosis specific camp for ages 7-17. Camp New Friends offers seven days and six nights...
July 2024
Brainy Ridge Camp NF

July 21, 2024 | 8:00 am - July 27, 2024 | 5:00 pm CDT

Blue Ridge School St. George, Virginia, United States

A 7 day, 6 night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2 and...
January 2025
Meet Camp NF

January 28, 2025 | 6:00 pm - 7:00 pm CST

Learn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is...

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

July 2022

July 2023

July 2024

January 2025

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