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An Introduction to Managing Plexiform Neurofibromas in NF1

January 13, 2026 | 7:00 pm 8:00 pm CST

Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share introductory information about managing plexiform neurofibromas in neurofibromatosis type 1.

At this event, you will learn more about:

  • Alexion’s support available for NF1 families
  • NF1 and NF1 PN
  • Next steps for patients and caregivers

This is a virtual event.

630-945-3562

View Organizer Website

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