43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

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$500 Wednesday Windfall

Name: $500 Wednesday Windfall
Start: 2025-10-26T18:00:00-05:00
End: 2025-11-26T18:00:00-06:00

October 26 | 6:00 pm – November 26 | 6:00 pm CDT

🎁 Get ready for a little holiday windfall!

On Wednesday, November 26th—just before Thanksgiving, Black Friday, and Cyber Monday—one lucky winner will take home a $500 Visa gift card to help with holiday expenses or a little extra cheer!

Here’s how it works:
🎟️ Every donation = raffle entries for the $500 Visa card.
❤️ Show your support! When you donate, you can choose a team or fundraiser to receive credit for your gift. It’s a fun way to vote with your dollars and cheer on your favorite family, friend, or team.
📣 Spread the word! Fundraisers can earn free entries when they share their page link—and when others (or they themselves) use that link to donate!

It’s simple: Give, share, and you might just win big!
Your donation helps people living with neurofibromatosis and schwannomatosis, and you could head into the holidays $500 richer.

Donations are accepted until 6 PM CST on the 26th, and the drawing will run automatically at 6:30 PM CST.

DONATE OR REGISTER A DEDICATEE