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NF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
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NF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
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Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have…
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The Department of Genetics at Stevenson University is conducting a survey on the psychological effects of “looking different” which was…
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Bonnie Klein-Tasman, Ph.D and her team at the University of Wisconsin-Milwaukee are looking for children ages 9 to 13 with…
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Dr. Maria Acosta at Children’s National Medical Center is looking for parents of children with Neurofibromatosis Type 1 in which…
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We are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…
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It can be challenging to gather information from enough people for neurofibromatosis type 1 research. Having a large number of…
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We have an URGENT request of anyone who is affected by multiple tumors from neurofibromatosis or has a loved one…
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The Genetics Division at the Faculty of Medicine and Health Sciences from Université de Sherbrooke in Québec has opened a…
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Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis Participants are needed for a study entitled:…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.