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NF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
Read MoreNF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
Read MoreCoping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have…
Read MoreThe Department of Genetics at Stevenson University is conducting a survey on the psychological effects of “looking different” which was…
Read MoreBonnie Klein-Tasman, Ph.D and her team at the University of Wisconsin-Milwaukee are looking for children ages 9 to 13 with…
Read MoreDr. Maria Acosta at Children’s National Medical Center is looking for parents of children with Neurofibromatosis Type 1 in which…
Read MoreWe are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…
Read MoreIt can be challenging to gather information from enough people for neurofibromatosis type 1 research. Having a large number of…
Read MoreWe have an URGENT request of anyone who is affected by multiple tumors from neurofibromatosis or has a loved one…
Read MoreThe Genetics Division at the Faculty of Medicine and Health Sciences from Université de Sherbrooke in Québec has opened a…
Read MoreGenetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis Participants are needed for a study entitled:…
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