
The NF1 Cognitive Aging Project
Participants 40+ May Earn $40. Florida State University College of Medicine is conducting a study to investigate cognitive patterns and…
Read MoreParticipants 40+ May Earn $40. Florida State University College of Medicine is conducting a study to investigate cognitive patterns and…
Read MoreParent’s May Earn $10. Kids 13-17 May Earn $210. Florida State University College of Medicine is conducting a study to…
Read MoreHelp Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
Read MoreI Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
Read MoreRTI-Health Solutions (RTI-HS) is inviting individuals, aged 18 years and older, who have been diagnosed with NF1-PN to participate in…
Read MoreThe NF1-TED study is still recruiting and is looking for 1000 participants, age 18 and older. This study looks to…
Read MoreIf you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…
Read MorePress Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…
Read MoreThere’s some exciting news for those with NF2-related schwannomatosis (NF2-SWN) that might bring hope to treatment options! A recent study…
Read MoreFebruary 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
Read More
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.