Do it Your Way Fundraising: Doesn’t Have to be Difficult or Time Consuming.
Fundraising is an essential part of keeping organizations operating to continue their mission of research, support, and advocacy. Events such…
Read More
Fundraising is an essential part of keeping organizations operating to continue their mission of research, support, and advocacy. Events such…
Read More
The captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…
Read More
Between 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A…
Read More
January 2020 started the beginning of the Public Health Emergency (PHE) as a response to the increased need for health…
Read More
Join us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…
Read More
With a few key words and the push of the enter key you can search pretty much any topic you…
Read More
Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read More
John Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
Read More
If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read More
Insurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…
Read More
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.