
Registration is now open for Camp New Friends July 16- July 22, 2023
Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read MoreStarted in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read MoreJohn Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read MoreInsurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…
Read More$25 million has been allocated specifically for the Neurofibromatosis Research Program (NFRP) in the Fiscal Year 2023 Omnibus appropriates bill…
Read MoreWe’re putting 2020 through 2022 in the review mirror and looking forward to an amazing 2023. Honestly, it’s been a…
Read MoreNeurofibromatosis Midwest is very excited to have Sarah Selogic join our team as our Care and Outreach Coordinator. Sarah is…
Read MoreOver 200 agencies and organizations such as The United Way, Community Action, and Goodwill just to name a few have…
Read MoreMany have heard the expression “It’s not what you know. It’s who you know.” That rings true when it comes…
Read MoreNovember 22nd is national Love Your Freckles Day! Growing up I didn’t know much about freckles other than the more…
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