
The Loss of an NF Legend: Dr. Vincent Riccardi
We are deeply saddened by the passing of Dr. Vincent “Vic” Riccardi, a pioneering expert in neurofibromatosis (NF) research and…
Read MoreWe are deeply saddened by the passing of Dr. Vincent “Vic” Riccardi, a pioneering expert in neurofibromatosis (NF) research and…
Read MoreThe NF Midwest Scholarship Program is proud to add another year of empowering students with neurofibromatosis (NF) to achieve their…
Read MoreWe are absolutely thrilled to share some amazing news: thanks to your incredible generosity, you’ve raised an outstanding $144,024 for…
Read MoreGolf fans and philanthropists, rejoice! The John Deere Classic’s Birdies for Charity program is back, offering you a fantastic way…
Read MoreThere’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreFebruary 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
Read MoreLegends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…
Read MoreHave you ever noticed faint, light brown patches on your skin? These “café au lait” spots are quite common, but…
Read MoreThank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…
Read MoreHere is your sign to start the new year working on your goal of continuing post high school education. The…
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