43 Years of Care and Ensuring No One Fights Alone!

General

A Letter From Amy

When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…

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What You Missed: 2025 iNFo Fair

Our 2025 iNFo Fair brought our NF community together with a powerful theme:  Be Proactive, Be Informed, Be Heard.   The…

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SamJam4NF’s Finale

They gave 10 AMAZING YEARS to the cause and raised a lot of funds. Thank you to the Oswald family…

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Helping Your Child with NF Thrive at School

Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…

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A Big Win For NF1-PN Patients in Europe

The European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…

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