
Strengthening the NF Community: Thanks to SpringWorks
SpringWorks Sponsorship Brings Hope and Support to the NF Community We are excited to share some wonderful news — SpringWorks Therapeutics is…
Read MoreSpringWorks Sponsorship Brings Hope and Support to the NF Community We are excited to share some wonderful news — SpringWorks Therapeutics is…
Read MoreBack-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…
Read MoreAre you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
Read MoreThe European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…
Read MoreI Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
Read MoreStarted in 2004, Camp NF (originally Camp New Friends) is a condition-specific camp for children with NF (including NF2-SWN and…
Read MoreThis May, NF Midwest, and other NF organizations are coming together to turn awareness into action. We’re turning up the…
Read MoreNF Midwest is back with its Walk4NF events, bringing communities together to raise funds and awareness for neurofibromatosis (NF) and…
Read MoreOnce again, NF Midwest advocates will be in Washington, DC, to urge our Senators and Representatives to continue supporting research…
Read MoreNF Midwest recently concluded its 2024 Champions of the Fall fundraising campaign, a dedicated effort to support individuals affected by…
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