A Letter From Amy
When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…
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When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…
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Did you know that November is National Epilepsy Awareness Month? According to the Epilepsy Foundation, individuals with NF1 are at…
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Our 2025 iNFo Fair brought our NF community together with a powerful theme: Be Proactive, Be Informed, Be Heard. The…
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Are you and your HCP often in agreement with your treatment plan for neurofibromatosis type 1 (NF1) or neurofibromatosis type…
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They gave 10 AMAZING YEARS to the cause and raised a lot of funds. Thank you to the Oswald family…
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If you or someone you love has neurofibromatosis type 1 (NF1), it’s important to know that women with NF1 between…
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SpringWorks Sponsorship Brings Hope and Support to the NF Community We are excited to share some wonderful news — SpringWorks Therapeutics is…
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Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…
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Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
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The European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…
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