Your Letter Can Make a Difference for NF Research
NF Midwest advocates will be in Washington, D.C., February 22–24 to urge Senators and Representatives to continue supporting research for…
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NF Midwest advocates will be in Washington, D.C., February 22–24 to urge Senators and Representatives to continue supporting research for…
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NF Midwest Scholarship Applications are now open! This is your sign to kick off the new year by pursuing your…
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Because of Her, It Started. Because of You, It Continues. Dear Friend of NF Midwest, My journey started in 1976…
Read MoreThe Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) Collaborative is an international effort to develop new standardized response criteria for determining treatment response in patients with NF1,…
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NF Midwest is excited to share important news for our community, news that brings real hope to people living with…
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When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…
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Did you know that November is National Epilepsy Awareness Month? According to the Epilepsy Foundation, individuals with NF1 are at…
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Our 2025 iNFo Fair brought our NF community together with a powerful theme: Be Proactive, Be Informed, Be Heard. The…
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Are you and your HCP often in agreement with your treatment plan for neurofibromatosis type 1 (NF1) or neurofibromatosis type…
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They gave 10 AMAZING YEARS to the cause and raised a lot of funds. Thank you to the Oswald family…
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