NF1 and Velopharyngeal Insufficiency
Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…
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Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…
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Due to the pandemic there will be NO NF Midwest Symposium and iNFo Fair this year. We may present short…
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KOSELUGO FAQS In April 2020 the U.S. Food and Drug Administration (FDA) approved KOSELUGOTM (selumetinib) for use in children over…
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We want you to know that we are working from home to do anything we can to continue to support you…
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NF Midwest has had a very important article written about Malignant Peripheral Nerve Sheath Tumors (or MPNSTs) in Neurofibromatosis Type…
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Dr. James Tonsgard, MD, of the University of Chicago, graciously contributed this article. The article is an overview of Gastrointestinal…
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If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…
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An interesting article was just published in the Journal of Paediatric and Child Health called “Perceived fatigue in children and…
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At NF Midwest’s Symposium and iNFo Fair last Saturday, November 9th, we were very fortunate to have Dr. Lu Le…
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Have you ever wondered what drives people to accomplish great things in their line of work? Steve Jobs once said…
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