
Sign-Up for July 29 Neurofibromatosis Type 2 Webinar
The NF Network will be presenting an all new webinar on Hearing Preservation/Rehabilitation in Neurofibromatosis Type 2 on July 29th. The presenter will be…
Read MoreThe NF Network will be presenting an all new webinar on Hearing Preservation/Rehabilitation in Neurofibromatosis Type 2 on July 29th. The presenter will be…
Read MoreWhat Should You Know? PDF Version Seizures occur in people with Neurofibromatosis type 1 more commonly than people who don’t…
Read MoreAt our annual symposium on October 25, 2014 Long-Sheng Chang, Phd from The Research Institute at Nationwide Children’s Hospital and…
Read MoreThank you to the Neuro Foundation of London for putting together a very informative and short video on MPNSTs (Malignant…
Read MoreAt NF Midwest’s annual symposium in October 2014 we invited Eva Dombi, MD, from the National Cancer Institute to present…
Read MoreAt our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on…
Read MoreWritten for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
Read MoreThe Neurofibromatosis Network presented this webinar on social emotional development in neurofibromatosis in September of 2014. The speaker was Sandy…
Read MoreThe Neurofibromatosis Network presented this webinar on seizures in neurofibromatosis type 1 in May of 2014. The speaker was Dr….
Read MoreNeurofibromatosis is a chronic, life-long disorder and unfortunately we find that adults with NF often neglect their own care. Sometimes…
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