Meet the Faces of NF Care
Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give…
Read More
Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give…
Read More
An article by Sharon Reynolds from the National Cancer Institue highlights the importance of people with neurofibromatosis type 1(NF1) to…
Read More
An update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…
Read More
NF Midwest recently provided funds to three NF providers through our Care Impact Grant Program. The NF Care Impact Grant…
Read More
The American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type…
Read More
Great news! A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type…
Read More
It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
Read More
After two years of hard work by NF Midwest, last year we were able to get the American Medical Association…
Read MoreLeading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes approved. For two years NF Midwest has…
Read More
If you have cutaneous neurofibromas that are causing you any distress you CAN have them removed. They are ALMOST always…
Read More
© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.