Johns Hopkins Various Clinical Trials
Johns Hopkins Comprehensive NF Center
Researchers at Johns Hopkins and around the world are investigating ways to slow the growth of NF-related tumors and prevent…
View ArticleJohns Hopkins Comprehensive NF Center
Researchers at Johns Hopkins and around the world are investigating ways to slow the growth of NF-related tumors and prevent…
View Article
2024 NF Midwest iNFo Fair (RECORDING)
| 2024
By Matthias Karajannis, MD, MS
Children's Tumor Foundation | 2023
Visit Website
NeurologyLife
| 2024
By Dr. Kaleb Yohay, NYU Langone Health
Massachusetts's General Hospital | 2024
If you or your child has NF1, and you don’t go to an NF Clinic Network Clinic (NFCN) or have…
View Article
University of Wisconsin-Milwaukee
| 2023
By Dr. Bonnie Klein-Tasman
Dana-Farber/Boston Children's | 2024
The Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) study will determine whether a blood test can detect malignant peripheral nerve…
View ArticleChildren's Tumor Foundation | 2023
Visit Website
Stanford University, in collaboration with Johns Hopkins University and The University of California San Francisco (UCSF)
| 2023
By Kavita Sarin, MD, PhD and Carlos Romo, MD
By NF Midwest
Visit Website
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.