For my family, getting involved with NF Midwest and fundraising really helped us on so many levels. We met other families who we could really relate to, our daughter met other kids with NF and we stayed informed and continued to learn about the disease. Also by fundraising, we knew we could help make a difference for the cause. NF Midwest has been a true support to us over the years.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.