BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Neurofibromatosis Midwest - ECPv6.15.16//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Neurofibromatosis Midwest X-ORIGINAL-URL:https://www.nfmidwest.org X-WR-CALDESC:Events for Neurofibromatosis Midwest REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Chicago BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20240310T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20241103T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20250309T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20251102T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20260308T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20261101T070000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0600 TZOFFSETTO:-0500 TZNAME:CDT DTSTART:20270314T080000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0500 TZOFFSETTO:-0600 TZNAME:CST DTSTART:20271107T070000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Australia/Eucla BEGIN:STANDARD TZOFFSETFROM:+0845 TZOFFSETTO:+0845 TZNAME:+0845 DTSTART:20250101T000000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Chicago:20251029T190000 DTEND;TZID=America/Chicago:20251029T200000 DTSTAMP:20260405T175723 CREATED:20251009T201208Z LAST-MODIFIED:20251010T193802Z UID:10000648-1761764400-1761768000@www.nfmidwest.org SUMMARY:Transitioning to Adult Care DESCRIPTION:Joe Booe\, Patient Education Manager from Alexion Pharmaceuticals\, will share information about transitioning to adult care. \n\n\n\nObjectives: \n\n\n\n\nExplain how creating a plan for this change can ease the burden.\n\n\n\nDescribe the differences between healthcare for children and adults.\n\n\n\nExplore how to move from pediatric to adult care.\n\n\n\n\n\nREGISTER HERE\n\n\n\n\n\n\nThis is a virtual event. URL:https://www.nfmidwest.org/event/transitioning-to-adult-care/ CATEGORIES:Educational Events ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/04/Transitioning-to-Early-Adulthood-Website-Event-Size-5.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20251210T190000 DTEND;TZID=America/Chicago:20251210T200000 DTSTAMP:20260405T175724 CREATED:20251016T203039Z LAST-MODIFIED:20251204T203622Z UID:10000649-1765393200-1765396800@www.nfmidwest.org SUMMARY:Navigating Stress and Cultivating Wellness DESCRIPTION:Gina Friesl\, Patient Education Manager from Alexion Pharmaceuticals\, will share information about Navigating Stress and Cultivating Wellness. \n\n\n\nObjectives: \n\n\n\n\nExamines the triggers and symptoms of stress\n\n\n\nExplores a variety of techniques for stress management\n\n\n\n\n\nREGISTER HERE\n\n\n\n\n\n\nThis is a virtual event. URL:https://www.nfmidwest.org/event/navigating-stress-and-cultivating-wellness/ CATEGORIES:Educational Events ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2025/10/Navigating-Stress-Website-Event-Size.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Australia/Eucla:20260105T000000 DTEND;TZID=Australia/Eucla:20260109T235959 DTSTAMP:20260405T175724 CREATED:20250813T202708Z LAST-MODIFIED:20250813T205012Z UID:10000645-1767571200-1768003199@www.nfmidwest.org SUMMARY:Young Leadership Program DESCRIPTION:Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance to step up and become a champion for the NF community. \n\n\n\nThis unique 5-day program is a collaboration between NF Midwest\, The Littlest Tumor Foundation\, and Texas NF. It is designed to equip young adults with the leadership skills and knowledge needed to advocate for NF research and education on Capitol Hill. \n\n\n\nYoung adults will have the opportunity to: \n\n\n\n\nDevelop critical leadership skills: Learn from experts and gain invaluable mentorship.\n\n\n\nAdvocate for NF research: Make your voice heard and drive progress in finding a cure.\n\n\n\nEducate Congress: Meet with lawmakers and share your story to raise awareness about NF. Engaging workshops on leadership and advocacy Meetings with influential members of Congress Briefings in both the House and Senate Visits to Congressional offices \n\n\n\n\nWhat to expect: \n\n\n\n\nEngaging workshops on leadership and advocacy\n\n\n\nMeetings with influential members of Congress\n\n\n\nBriefings in both the House and Senate\n\n\n\nVisits to Congressional offices\n\n\n\n\nWe’re seeking motivated young adults who are ready to make a positive impact. Join us in creating a brighter future for those affected by neurofibromatosis and schwannomatosis. \n\n\n\nThe 2026 program will be held on January 5-9\, 2026 in Washington\, D.C. \n\n\n\nApply today and become part of the next generation of NF leaders! Scholarships are available to qualified applicants. URL:https://www.nfmidwest.org/event/young-leadership-program/ ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2025/08/NF-Young-Leadership.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260113T190000 DTEND;TZID=America/Chicago:20260113T200000 DTSTAMP:20260405T175724 CREATED:20251212T171509Z LAST-MODIFIED:20260109T203451Z UID:10000651-1768330800-1768334400@www.nfmidwest.org SUMMARY:Discovering possibilities for neurofibromatosis type 1 (NF1) plexiform neurofibromas in adults. DESCRIPTION:Joe Booe\, Patient Education Manager from Alexion Pharmaceuticals\, will share discovering possibilities for neurofibromatosis type 1 (NF1) plexiform neurofibromas in adults.. \n\n\n\nAt this event\, you will learn more about: \n\n\n\n\nAlexion’s support available for NF1 families\n\n\n\nNF1 and NF1 PN\, especially in adults\n\n\n\nNext steps for patients and caregivers\n\n\n\n\n\nREGISTER HERE\n\n\n\n\n\n\nThis is a virtual event. URL:https://www.nfmidwest.org/event/an-introduction-to-managing-plexiform-neurofibromas-in-nf1/ CATEGORIES:Educational Events ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2025/12/An-intro-to-managing-NF1-PNs-Website-Event-Size.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260217T190000 DTEND;TZID=America/Chicago:20260217T200000 DTSTAMP:20260405T175724 CREATED:20260128T035618Z LAST-MODIFIED:20260212T173037Z UID:10000653-1771354800-1771358400@www.nfmidwest.org SUMMARY:Neurofibromatosis Type 1 (NF1) Plexiform Neurofibromas in Adults: A Closer Look at Koselugo (selumetinib) DESCRIPTION:Join us as Dr. Jacob Henderson presents a more in-depth look at Koselugo for the treatment of plexiform tumors in neurofibromatosis type 1. Dr. Henderson is a specialist in pediatric hematology-oncology at Mary Bridge Children’s Hospital in Fox Island\, WA. \n\n\n\nAt this event\, you will learn more about: \n\n\n\n\nNext steps for patients and caregivers\n\n\n\nNF1 and NF1 PN\, especially in adults\n\n\n\nAlexion’s support available for NF1 families\n\n\n\n\n\nREGISTER HERE\n\n\n\n\n\n\nThis is a virtual event. URL:https://www.nfmidwest.org/event/neurofibromatosis-type-1-nf1-plexiform-neurofibromas-in-adults-a-closer-look-at-koselugo-selumetinib/ CATEGORIES:Educational Events ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/01/An-intro-to-managing-NF1-PNs-Website-Event-Size-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260314T083000 DTEND;TZID=America/Chicago:20260314T130000 DTSTAMP:20260405T175724 CREATED:20260125T164523Z LAST-MODIFIED:20260310T162537Z UID:10000652-1773477000-1773493200@www.nfmidwest.org SUMMARY:Lexington\, KY - Community Conversation DESCRIPTION:Listen and learn together\, with experts and each other. \n\n\n\n\n\nThe morning will include: \n\n\n\n\nContinental breakfast and lunch\n\n\n\nAn ask me anything Q&A\n\n\n\nShort educational session\n\n\n\nTime to socialize and meet others\n\n\n\n\nProfessionals attending the event include: \n\n\n\n\nDr. Donita Lightner\, MD – Pediatric Neuro-oncologist\n\n\n\nDr. Michael Hendricks\, MD – Pediatric Neurologist\n\n\n\nKim Osborne – Patient Services\n\n\n\nAlyssa Frye\, PsyD – Clinical Psychologist\, UKY\n\n\n\nCatherine Garcia Stangherlin\, MD – Adult Neurologist/Neuro-oncologist \n\n\n\n\n\nRegister\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nJoin us for a morning of learning and sharing at Shriners Children’s Hospital in Lexington\, KY\, on Saturday\, March 14th. Experts from the University of Kentucky\, including the team at the NF clinic there will be in had to share their professional knowledge. Equally important\, we will share experiences with each other. \n\n\n\nThere will be some educational sessions\, material to take home\, awareness merchandise\, and an Ask Me Anything Q&A. The morning will also include a continental breakfast and end with lunch. \n\n\n\nProfessionals Attending Include: Dr. Donita Lightner\, MD – Pediatric Neuro-Oncologist; Dr. Michael Hendricks\, MD – Pediatric Neurologist; Kim Osborne – Patient Services; Alyssa Frye\, PsyD – Clinical Psychologist\, UKY; Catherine Garcia Stangherlin\, MD – Adult Neurologist / Neuro-Oncologist. \n\n\n\nThank You to our Sponsors URL:https://www.nfmidwest.org/event/ky-community-conversation/ LOCATION:Shriner Children’s Hospital\, 110 Transcript Ave\, Lexington\, KY\, 40508 CATEGORIES:Educational Events,NF Get Togethers ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/01/Community-Conversations-Website-668x400-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260324T190000 DTEND;TZID=America/Chicago:20260324T200000 DTSTAMP:20260405T175724 CREATED:20260306T215818Z LAST-MODIFIED:20260306T225625Z UID:10000666-1774378800-1774382400@www.nfmidwest.org SUMMARY:NF1 Peer Conversations DESCRIPTION:Join other adults living with NF1 for NF1 Peer Conversations—an online\, supportive space to connect\, share experiences\, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest\, while always leaving time for open discussion and questions. These conversations are currently held on the fourth Tuesday of each month. Visit our Events page for additional NF1 Peer conversations and updated dates. \n\n\n\n\nRegistration URL:https://www.nfmidwest.org/event/nf1-peer-conversations/2026-03-24/ CATEGORIES:Chat and Support ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/03/Peer-Conversations-668X400-Website.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260413T190000 DTEND;TZID=America/Chicago:20260413T200000 DTSTAMP:20260405T175724 CREATED:20260306T212951Z LAST-MODIFIED:20260306T225729Z UID:10000662-1776106800-1776110400@www.nfmidwest.org SUMMARY:NF Parent Conversations DESCRIPTION:Join our Parent Community Conversations—a welcoming online space for parents and caregivers affected by NF to connect with others who understand. Some conversations may be predetermined around a specific topic\, while others offer open discussion and shared support. These conversations are currently held on the second Monday of each month. Visit our Events page for additional parent conversations and updated dates. We invite people with any type of NF to attend.  \n\n\n\n\nRegistration URL:https://www.nfmidwest.org/event/nf-parent-conversations/2026-04-13/ CATEGORIES:Chat and Support ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/03/Parent-Conversations-668X400-Website.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260421T190000 DTEND;TZID=America/Chicago:20260421T200000 DTSTAMP:20260405T175724 CREATED:20260328T004829Z LAST-MODIFIED:20260401T220353Z UID:10000670-1776798000-1776801600@www.nfmidwest.org SUMMARY:7 Simple Strategies for Sibling Support DESCRIPTION:Siblings of children with Neurofibromatosis play important roles in their families\, and often experience similar concerns and opportunities as parents. This interactive session by Emily Holl\, Director of the national Sibling Support Project\, will present some common issues that siblings experience and share a handful of simple\, practical strategies for parents to help minimize siblings’ concerns and maximize opportunities to support wellbeing. Local resources will be shared. \n\n\n\nPresenter Emily Holl is the Director of The Sibling Support Project\, the first national program dedicated to the life-long and ever-changing concerns of millions of siblings of people with developmental and health concerns. Learn more at www.siblingsupport.org.  \n\n\n\nREGISTER BELOW\n\n\n\n\n \n \n Step 1 of 2\n \n \n 50%\n \n \n Contact DetailsFirst Name(Required)Middle InitialLast Name(Required)Email(Required)\n \n Enter Email\n \n \n \n Confirm Email\n \n \n \n PhoneAddress \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n State / Province / Region\n \n \n ZIP / Postal Code\n \n \n Country\n AfghanistanAlbaniaAlgeriaAmerican SamoaAndorraAngolaAnguillaAntarcticaAntigua and BarbudaArgentinaArmeniaArubaAustraliaAustriaAzerbaijanBahamasBahrainBangladeshBarbadosBelarusBelgiumBelizeBeninBermudaBhutanBoliviaBonaire\, Sint Eustatius and SabaBosnia and HerzegovinaBotswanaBouvet IslandBrazilBritish Indian Ocean TerritoryBrunei DarussalamBulgariaBurkina FasoBurundiCabo VerdeCambodiaCameroonCanadaCayman IslandsCentral African RepublicChadChileChinaChristmas IslandCocos IslandsColombiaComorosCongoCongo\, Democratic Republic of theCook IslandsCosta RicaCroatiaCubaCuraçaoCyprusCzechiaCôte d'IvoireDenmarkDjiboutiDominicaDominican RepublicEcuadorEgyptEl SalvadorEquatorial GuineaEritreaEstoniaEswatiniEthiopiaFalkland IslandsFaroe IslandsFijiFinlandFranceFrench GuianaFrench PolynesiaFrench Southern TerritoriesGabonGambiaGeorgiaGermanyGhanaGibraltarGreeceGreenlandGrenadaGuadeloupeGuamGuatemalaGuernseyGuineaGuinea-BissauGuyanaHaitiHeard Island and McDonald IslandsHoly SeeHondurasHong KongHungaryIcelandIndiaIndonesiaIranIraqIrelandIsle of ManIsraelItalyJamaicaJapanJerseyJordanKazakhstanKenyaKiribatiKorea\, Democratic People's Republic ofKorea\, Republic ofKuwaitKyrgyzstanLao People's Democratic RepublicLatviaLebanonLesothoLiberiaLibyaLiechtensteinLithuaniaLuxembourgMacaoMadagascarMalawiMalaysiaMaldivesMaliMaltaMarshall IslandsMartiniqueMauritaniaMauritiusMayotteMexicoMicronesiaMoldovaMonacoMongoliaMontenegroMontserratMoroccoMozambiqueMyanmarNamibiaNauruNepalNetherlandsNew CaledoniaNew ZealandNicaraguaNigerNigeriaNiueNorfolk IslandNorth MacedoniaNorthern Mariana IslandsNorwayOmanPakistanPalauPalestine\, State ofPanamaPapua New GuineaParaguayPeruPhilippinesPitcairnPolandPortugalPuerto RicoQatarRomaniaRussian FederationRwandaRéunionSaint BarthélemySaint Helena\, Ascension and Tristan da CunhaSaint Kitts and NevisSaint LuciaSaint MartinSaint Pierre and MiquelonSaint Vincent and the GrenadinesSamoaSan MarinoSao Tome and PrincipeSaudi ArabiaSenegalSerbiaSeychellesSierra LeoneSingaporeSint MaartenSlovakiaSloveniaSolomon IslandsSomaliaSouth AfricaSouth Georgia and the South Sandwich IslandsSouth SudanSpainSri LankaSudanSurinameSvalbard and Jan MayenSwedenSwitzerlandSyria Arab RepublicTaiwanTajikistanTanzania\, the United Republic ofThailandTimor-LesteTogoTokelauTongaTrinidad and TobagoTunisiaTurkmenistanTurks and Caicos IslandsTuvaluTürkiyeUS Minor Outlying IslandsUgandaUkraineUnited Arab EmiratesUnited KingdomUnited StatesUruguayUzbekistanVanuatuVenezuelaViet NamVirgin Islands\, BritishVirgin Islands\, U.S.Wallis and FutunaWestern SaharaYemenZambiaZimbabweÅland Islands \n \n \n \n \n \n \n \n \n \n \n Event DetailsGenderMaleFemaleNon-binaryAgenderMy gender isn't listedPrefer Not to AnswerBirth DateMonthMonth123456789101112DayDay12345678910111213141516171819202122232425262728293031YearYear202720262025202420232022202120202019201820172016201520142013201220112010200920082007200620052004200320022001200019991998199719961995199419931992199119901989198819871986198519841983198219811980197919781977197619751974197319721971197019691968196719661965196419631962196119601959195819571956195519541953195219511950194919481947194619451944194319421941194019391938193719361935193419331932193119301929192819271926192519241923192219211920If you prefer you may choose January 1 and the year of your birth. This information helps with programming.How are you impacted by NF? (select all that apply)(Required)\n \n I am affected\n \n \n I have an affected child\n \n \n I have someone else who is affected\n \n \n I prefer not to say\n \n \n Not applicable\n What type of NF are you impacted by?(Required)\n \n \n Neurofibromatosis Type 1 (NF1)\n \n \n \n Neurofibromatosis Type 2 (NF2-SWN\n \n \n \n Other Schwannomatosis (SWN)\n \n \n \n Unknown\n \n \n \n Other\n \n \n \n Not Applicable\n Mobile phoneIf you’d like to receive a text reminder and other updates\, please provide your mobile number.How did you hear about this event?Social MediaNF Midwest EmailTextRefer a FriendFrom PhysicianOther URL:https://www.nfmidwest.org/event/7-simple-strategies-for-sibling-support/ ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/03/OLD-WEBSITE-EVENT-sibling.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260430T183000 DTEND;TZID=America/Chicago:20260430T190000 DTSTAMP:20260405T175724 CREATED:20260401T194011Z LAST-MODIFIED:20260401T235058Z UID:10000671-1777573800-1777575600@www.nfmidwest.org SUMMARY:Learn About Camp NF @ Brainy Ridge DESCRIPTION:NF Midwest is pleased to share that NF Midwest is hosting a Summer Camp Info Session for parents and caregivers on April 30th from 6:30–7:00 CST / 7:30–8:00 EDT. \n\n\n\nOur annual NF camp is for kids ages 6 – 18 at Brainy Ridge\, located in the beautiful St. George\, VA\, and features a 7-day\, 6-night residential summer camp for children and teens living with neurofibromatosis Type 1\, NF2-related SWN\, and schwannomatosis. \n\n\n\nMedical staff\, including physicians\, nurses\, social workers\, and psychologists\, are on-site 24 hours a day. At Brainy Ridge\, children and teens have the opportunity to learn from peers and mentors and gain a better understanding of NF\, individual strengths\, and self-worth.  URL:https://www.nfmidwest.org/event/learn-about-camp-nf-brainy-ridge/ CATEGORIES:Camp ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2025/04/Brainy-Ridge-Logo.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260509T090000 DTEND;TZID=America/Chicago:20260509T130000 DTSTAMP:20260405T175724 CREATED:20260203T164659Z LAST-MODIFIED:20260203T164716Z UID:10000658-1778317200-1778331600@www.nfmidwest.org SUMMARY:2026 Walk4NF Madison\, WI DESCRIPTION:Walk4NF Madison Details\nGet ready for the annual Madison Walk4NF and support those with neurofibromatosis! \nPlus\, NF Midwest is celebrating over 44 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Madison as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!! All this helps to create awareness of neurofibromatosis and the need to support those with it. URL:https://www.nfmidwest.org/event/2026-walk4nf-madison-wi/ LOCATION:Capital Brewery\, 7734 Terrace Avenue \, Middleton\, WI\, 53562\, United States CATEGORIES:Walks 4NF ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/02/Headline-Image-with-white-border-NF-Logo-and-Walk4NF-Madison.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260516T090000 DTEND;TZID=America/Chicago:20260516T130000 DTSTAMP:20260405T175724 CREATED:20260203T165212Z LAST-MODIFIED:20260203T165217Z UID:10000659-1778922000-1778936400@www.nfmidwest.org SUMMARY:2026 Walk4NF Indianapolis\, IN DESCRIPTION:Walk4NF Indianapolis Details\nGet ready for the annual Indianapolis Walk4NF and support those with neurofibromatosis! \nPlus\, NF Midwest is celebrating over 44 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Indianapolis as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!! All this helps to create awareness of neurofibromatosis and the need to support those with it. URL:https://www.nfmidwest.org/event/2026-walk4nf-indianapolis-in/ LOCATION:White River State Park\, 801 W Washington Street\, Indianapolis\, IN\, 46204\, United States CATEGORIES:Walks 4NF ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/02/Headline-Image-with-white-border-NF-Logo-and-Walk4NF-Indy.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260530T090000 DTEND;TZID=America/Chicago:20260530T130000 DTSTAMP:20260405T175724 CREATED:20260203T165459Z LAST-MODIFIED:20260203T165503Z UID:10000657-1780131600-1780146000@www.nfmidwest.org SUMMARY:2026 Walk4NF Columbia\, MO DESCRIPTION:Walk4NF Columbia Details\nGet ready for the annual Columbia Walk4NF and support those with neurofibromatosis! \nPlus\, NF Midwest is celebrating over 44 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Columbia as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!! All this helps to create awareness of neurofibromatosis and the need to support those with it. URL:https://www.nfmidwest.org/event/2026-walk4nf-columbia-mo/ LOCATION:Stephens Lake Park\, Columbia\, MO\, 2001 E Broadway\, Columbia\, MO\, 65201\, United States CATEGORIES:Walks 4NF ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/02/Headline-Image-with-white-border-NF-Logo-and-Walk4NF-Columbia.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260606T083000 DTEND;TZID=America/Chicago:20260606T130000 DTSTAMP:20260405T175724 CREATED:20260203T165726Z LAST-MODIFIED:20260203T165730Z UID:10000656-1780734600-1780750800@www.nfmidwest.org SUMMARY:2026 Walk4NF Naperville\, IL DESCRIPTION:Walk4NF Naperville Details\nGet ready for the 24th Naperville Walk4NF – the grandaddy of them all supporting those affected by neurofibromatosis! \nPlus\, NF Midwest is celebrating over 44 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Naperville as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!! All this helps to create awareness of neurofibromatosis and the need to support those with it. URL:https://www.nfmidwest.org/event/2026-walk4nf-naperville-il/ LOCATION:Grand Pavilion @ Riverwalk Park – Naperville\, 912 Honorary Sindt Memorial Ct\, Naperville\, Illinois\, 60540\, United States CATEGORIES:Walks 4NF ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/02/Headline-Image-with-white-border-NF-Logo-and-Walk4NF-Naperville.png ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Chicago:20260719T080000 DTEND;TZID=America/Chicago:20260725T170000 DTSTAMP:20260405T175724 CREATED:20260128T040443Z LAST-MODIFIED:20260128T042755Z UID:10000655-1784448000-1784998800@www.nfmidwest.org SUMMARY:Brainy Ridge Camp NF DESCRIPTION:A 7-day\, 6-night residential summer camp for children and teens living with Neurofibromatosis Type 1\, Type 2\, and Schwannomatosis. Medical staff\, including physicians\, nurses\, social workers\, and psychologists\, are on-site 24 hours a day. At Brainy Ridge\, children and teens have the opportunity to learn from peers and mentors and gain a better understanding of NF\, individual strengths\, and self-worth.  \n\n\n\n*Scholarships available \n\n\n\n\nMore Information and Registration URL:https://www.nfmidwest.org/event/brainy-ridge-camp-nf-2/ LOCATION:Blue Ridge School\, St. George\, Virginia\, United States CATEGORIES:Camp ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2026/01/Brainy-Camp-2.png END:VEVENT END:VCALENDAR