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DTSTART;TZID=America/Chicago:20240424T123000
DTEND;TZID=America/Chicago:20240424T133000
DTSTAMP:20260405T164340
CREATED:20240423T185937Z
LAST-MODIFIED:20240423T185939Z
UID:10000122-1713961800-1713965400@www.nfmidwest.org
SUMMARY:Virtual Open Office Hours
DESCRIPTION:Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis\, but aren’t sure where to turn? NF Midwest is here for you! We’re excited to offer virtual open office hours\, a chance to connect directly with one of our staff in a welcoming online environment. \n\n\n\nDuring these virtual office hours\, you can: \n\n\n\n\nGet moral support: Navigating NF can be challenging. Our staff is here to offer encouragement and support.\n\n\n\nFind resources: Need help locating resources or a physician we will help to point you in the right direction. \n\n\n\nMuch more: Dealing with a situation or have a question and not sure where to start? We may not have the answer to everything\, but we might be able to connect you to someone who does. \n\n\n\n\nOthers may also be in the Zoom chat. If you would like a private meeting\, please reach out to Sarah.
URL:https://www.nfmidwest.org/event/virtual-open-office-hours-2/
LOCATION:Illinois
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240420T090000
DTEND;TZID=America/Chicago:20240420T130000
DTSTAMP:20260405T164340
CREATED:20231218T174759Z
LAST-MODIFIED:20240109T165052Z
UID:10000109-1713603600-1713618000@www.nfmidwest.org
SUMMARY:2024 Walk4NF Columbia\, MO
DESCRIPTION:Walk4NF Columbia Details\nGet ready for the annual Columbia Walk4NF!  \nPlus\, NF Midwest is celebrating over 42 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Columbia as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2024-walk4nf-columbia-mo/
LOCATION:Stephens Lake Park\, Columbia\, MO\, 2001 E Broadway\, Columbia\, MO\, 65201\, United States
CATEGORIES:Walks 4NF
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240410T123000
DTEND;TZID=America/Chicago:20240410T133000
DTSTAMP:20260405T164340
CREATED:20240403T190105Z
LAST-MODIFIED:20240405T132643Z
UID:10000121-1712752200-1712755800@www.nfmidwest.org
SUMMARY:Virtual Open Office Hours
DESCRIPTION:Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis\, but aren’t sure where to turn? NF Midwest is here for you! We’re excited to offer virtual open office hours\, a chance to connect directly with one of our staff in a welcoming online environment. \n\n\n\nDuring these virtual office hours\, you can: \n\n\n\n\nGet moral support: Navigating NF can be challenging. Our staff is here to offer encouragement and support.\n\n\n\nFind resources: Need help locating resources or a physician we will help to point you in the right direction. \n\n\n\nMuch more: Dealing with a situation or have a question and not sure where to start? We may not have the answer to everything\, but we might be able to connect you to someone who does. \n\n\n\n\nOthers may also be in the Zoom chat. If you would like a private meeting\, please reach out to Sarah.
URL:https://www.nfmidwest.org/event/virtual-open-office-hours/
LOCATION:Illinois
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240328T190000
DTEND;TZID=America/Chicago:20240328T200000
DTSTAMP:20260405T164340
CREATED:20231025T144429Z
LAST-MODIFIED:20240321T161059Z
UID:10000107-1711652400-1711656000@www.nfmidwest.org
SUMMARY:NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child's Advocate.
DESCRIPTION:Gain a new perspective on caring for a child with NF1 PN from this presentation by Regina Zambrano\, MD. Learn about NF1 PN\, the importance of PN monitoring\, and how to build your NF1 PN team. \n\n\n\n\n\n\n\n  \n\n\n\n\nFor more information
URL:https://www.nfmidwest.org/event/nf1-pn-educational-event/
LOCATION:Illinois
CATEGORIES:Educational Events
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DTSTART;TZID=America/Chicago:20231128T000000
DTEND;TZID=America/Chicago:20231128T235900
DTSTAMP:20260405T164340
CREATED:20231110T165240Z
LAST-MODIFIED:20231114T172225Z
UID:10000108-1701129600-1701215940@www.nfmidwest.org
SUMMARY:#GivingTuesday - The Time is Now
DESCRIPTION:“The most beautiful thing about giving is that it can start with just one person\, but it can change the lives of many. Join me in making a difference today!” \n\n\n\n\n– Zig Ziglar\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nGive a Dose of Hope this #GivingTuesday!\n\n\n\nIt’s that time of year when generosity takes center stage! Giving Tuesday is on Tuesday\, November 28th\, and we’re calling on all our incredible supporters to join hands and make a difference for NF Midwest. \n\n\n\nOn this Global Day of Giving\, you have the power to bring smiles\, hope\, and support to individuals and families affected by neurofibromatosis. Your contribution can pave the way for improved clinics\, increased awareness\, groundbreaking research\, and vital education and support in our territory. \n\n\n\nThis Giving Tuesday let’s unite with a common goal—to transform lives and create a brighter future. Every donation\, no matter how big or small\, makes a tremendous impact. \n\n\n\nMark your calendars for Giving Tuesday and get ready to be a part of something truly amazing. Together\, we can make a world of difference for NF Midwest! \n\n\n\nStay tuned for more updates and ways to get involved. Let’s spread the love and share the hope! \n\n\n\n\n\n\n\n\n\n\n\nWays to Help on #GivingTuesday\n\n\n\nOur greatest success is raising funds is with your support!  \n\n\n\nYou can donate today by using the donate button below.  Please share this campaign with your friends so they can support our cause as well.   \n\n\n\n\nDONATE TODAY!!\n\n\n\n\n\n\n\n\nWe encourage you to develop a Facebook Fundraising for Giving Tuesday to support NF Midwest. Invite your friends to join you in supporting the efforts to support those with NF and research to find a cure. There will also be a NF Midwest Facebook Fundraiser setup which you can share with your Facebook friends. \n\n\n\nAnother way is to direct people to directly support NF Midwest by sharing our The Time is Now campaign link which will be provided soon. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nThank You!\n\n\n\n\n\n\n\n\nAs always\, we want to thank you for all you do to support NF Midwest and its mission.
URL:https://www.nfmidwest.org/event/givingtuesday-the-time-is-now/
LOCATION:Illinois
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231118T170000
DTEND;TZID=America/Chicago:20231118T220000
DTSTAMP:20260405T164340
CREATED:20231003T160653Z
LAST-MODIFIED:20231005T165535Z
UID:10000105-1700326800-1700344800@www.nfmidwest.org
SUMMARY:SamJam's BBQ & Boogie
DESCRIPTION:The music and fun is in November this year! Support the ongoing efforts for NF research and support services for NF patients and their families! \n\n\n\nLive music and dinner to benefit Neurofibromatosis (NF) featuring 2 bands\, fantastic food from Fat Albert’s BBQ\, Caribbean Cruise giveaway\, silent auction\, cash bar\, and more! \n\n\n\n\n\n\n\n\n5:00 pm: Doors Open \n\n\n\n5:30-7:00 pm: Dinner \n\n\n\n6:00 pm: As the Crowe Flies (The best of bluegrass)  \n\n\n\n\n\n\n\n\n\n\n\n8:00 pm: Voodoo Players (Mixtape of rock favorites) \n\n\n\n\n\n\n\n \n\n\n\n\n\n\n\n\n\n\n\n\nSamJam is about a long journey for a man who wants to give back… and pay ahead. Sam Oswald underwent spinal fusion surgery when he was four years old. \n\n\n\nAlong with the months of recuperation from the surgery and learning to walk again\, Sam also learned of the diagnosis that would follow him throughout his life—neurofibromatosis (NF). A funny-sounding affliction\, but a neurological disorder that strikes 1 in every 2\,500 people. While you may not have heard of NF\, it affects more people than Muscular Dystrophy\, Tay-Sachs\, and Huntington’s disease combined. \n\n\n\nSince that early age\, Sam has had two brain tumors\, shunt revisions\, bone grafting on both legs\, knee surgery\, dermal tumor removal\, and eye surgery. Just a few years ago\, Sam completed two surgeries for a rare tumor in his leg\, radiation\, and chemotherapies\, and is left with a lower leg that no longer functions. \n\n\n\nMore recently\, Sam has undergone additional surgeries to remove a tumor in his chest and a recurrence of cancer in his leg. \n\n\n\nNow\, at 38 years old\, Sam has much he could complain about\, but you won’t hear it. Sam continues to lead a very positive life\, live independently\, and is a friend to everyone he meets. The years of treatment and courage would not be apparent to people first meeting Sam. \n\n\n\nAfter all this\, Sam thinks it’s time to give back… to thank those who have helped and supported him. He also wants to pay it forward so other patients with NF can get the assistance they need\, research can continue\, and the public can be more aware of this disorder that very well may strike someone you know. One of Sam’s passions is music of all kinds… and that\, my friends\, was the start of SamJam! \n\n\n\nThanks to our wonderful sponsors\, supporters\, and everyone who attended\, we have been able to raise almost $80\,000 for NF Midwest during the first eight SamJams!  Join with us to the make SamJam 2023 even better!
URL:https://www.nfmidwest.org/event/samjams-bbq-boogie/
LOCATION:The Rustic Venues\, 24720 N. Standard City Road\, Girard\, Illinois\, 62640\, United States
CATEGORIES:DIY Fundraisers
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/10/SamJam-DIY-Image-1200x630-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231021T080000
DTEND;TZID=America/Chicago:20231021T160000
DTSTAMP:20260405T164340
CREATED:20230313T174459Z
LAST-MODIFIED:20231019T024648Z
UID:10000098-1697875200-1697904000@www.nfmidwest.org
SUMMARY:2023 iNFo Fair
DESCRIPTION:GO TO REGISTRATION AND DONATION PAGE\n\n\n\n\n\n\n\n\n\n\nIn-Person Once Again! We’re So Much Better Together! \n\n\n\nA day of education for families and individuals affected by neurofibromatosis\, a genetic disorder that causes tumors to grow on nerves throughout the body. This event aims to provide a supportive environment for attendees to learn about the latest advances in research\, treatment options\, and practical resources for managing the condition. Expert speakers\, interactive panels and discussion\, and networking opportunities\, offer a valuable experience for those impacted by neurofibromatosis to connect with others and gain a deeper understanding of this complex disorder. \n\n\n\nJoin us for an all day iNFo Fair in Naperville\, Illinois on Saturday\, October 21st. We are still setting all the topics\, however expect topics that teach you things you need to know and chances to socialize and discuss! \n\n\n\n\n\nLOCATION: \n\n\n\n\n\nNorthern Illinois University – Naperville Campus1120 East Diehl RoadNaperville\, IL 60563 \n\n\n\n\n\n\n\nTIME: \n\n\n\n\n\nContinental Breakfast starts at 8:00 am CSTSessions start at 9:00 am CSTDay will end at approximately 4:00 pm CST \n\n\n\n\n\nTOPICS/SESSIONS\n\n\n\nAn approximate agenda with session times will be set a week or so before the event. TOPICS ARE NOT YET COMPLETE! \n\n\n\n\nGENERAL TOPICS\nNF Overview and Update – Learn about NF1\, NF2-related schwannomatosis\, and schwannomatosis including  new diagnostic criteria\, new statistics\, and new wording! – Carlos Prada\, MD; Lurie Children’s Hospital Neurofibromatosis Program \n\n\n\n“Where Does it Hurt?” A Conversation on NF\, Mental Health\, and Well-Being – Ethan Lester\, PhD; Clinical Psychologist; Massachusetts General Hospital \n\n\n\n\nNF1 TOPICS\nCutaneous Neurofibromas vs. Plexiform Neurofibromas. What’s the Difference? – Carlos Romo\, MD; ​Neurologist; Johns Hopkins University School of Medicine  \n\n\n\nCutaneous Neurofibroma Treatment Options and Research – Mandi Johnson\, MBA; Johns Hopkins University School of Medicine \n\n\n\nPlexiform Neurofibromas Treatment Options and Research Update – Carlos Romo\, MD; ​Neurologist; Johns Hopkins University School of Medicine   \n\n\n\n\n\n\n\nEmpowering Afternoon Conversations: Perspectives on NF – Patients’ Insights & Parenting Wisdom \n\n\n\n\n\n\n\n\n\n❤ What I Know Now That I Wish I Knew Then: Parenting a Child with NF – Gain from the wisdom of experienced parents of children with NF1. Discover valuable insights on many topics as they share their journey\, offering support to fellow parents\, and building a knowledgeable community. \n\n\n\n❤ Navigating NF: Insights from Patients – Helpful vs. Hurtful Experiences – This conversation is meant to help us all gain valuable insight from real experiences of people navigating the complexities of having NF so that we can do better and understand more.  \n\n\n\n\n\n\nNF2-RELATED SWN TOPICS\nHearing Preservation in NF2 – Konstantina Stankovic\, MD\, PhD\, FACS; Stanford Ear Institute \n\n\n\nNF2 Natural History Study Results – Christina Hayes CRNP\, National Institutes of Health \n\n\n\nOverview of Treatment Options in NF2-Related Schwannomatosis – Carlos Romo\, MD; ​Neurologist; Johns Hopkins University School of Medicine  \n\n\n\n❤ What I Know Now That I Wish I Knew Then – Gain from the wisdom of experienced patients and parents of children with NF2/SWN. Discover valuable insights on many topics as they share their journey\, offering support to fellow parents\, and building a knowledgeable community.  \n\n\n\n \n\n\n\n\n\n\nPRESENTER BIOS\n\n\n\n\nCHRISTINA HAYES\, MSN\, CRNP \n\n\n\n\nChristi is a family nurse practitioner who has worked with the Surgical Neurology Branch at the National Institutes of Health since 2012. She works with patients with NF2 and other neurosurgical disorders in both inpatient and outpatient settings. She values her role as an associate investigator on the NF2 study and enjoys working with the PI\, other investigators\, and the multi-disciplinary care team to learn more about NF2 and contribute towards efforts to progress research and improve care.   \n\n\n\n\nMANDI JOHNSON\, MBA\n\n\n\n\nMandi serves as Research Coordinator at the Johns Hopkins Department of Dermatology Cutaneous Translational Research Program. Her experience spans various research environments\, including a traineeship at the Armed Forces Research Institute of Medical Sciences in Bangkok\, Thailand. Additionally\, she is recipient of the post-baccalaureate Cancer Research Training Award from the National Institutes of Health\, Department of Dermatology. \n\n\n\nCurrently\, she dedicates her efforts to coordinating the Natural History Study of Cutaneous Neurofibromas in People with NF1. This collaborative endeavor unites the fields of Dermatology and Neurology and evaluates how cutaneous neurofibromas develop\, progress\, and how they affect the quality of life of people living with NF1. \n\n\n\nBeyond her research commitments\, Mandi is passionate about advocating for and raising awareness of NF1\, contributing to its understanding and support. \n\n\n\n\nETHAN LESTER\, PHD\n\n\n\n\nDr. Ethan Lester is a clinical psychologist at Massachusetts General Hospital\, an Assistant Professor at Harvard Medical School\, and an affiliated researcher with the Center for Health Outcomes and Interdisciplinary Research. Dr. Lester specializes in behavioral medicine and mental health care for people with neurological illnesses and conducts individual psychotherapy/counseling visits with patients at the hospital. Specific to NF\, Dr. Lester was the lead clinician on the Department of Defense Funded Clinical Trial at MGH for adults with NF1\, NF2\, and Schwannomatosis and is also the creator of the web-platform www.NF-Web.org (click to check it out)\, funded in part by NF Midwest.   \n\n\n\n\nCARLOS PRADA\, MD\n\n\n\n\nDr. Prada finds it an honor to work with children\, adults\, and families with genetic diseases. His clinical work focuses on improving health for individuals with rare diseases by developing individualized and integrated care across specialties to promote their wellbeing. For 6 years\, he co-led the RASopathies program at Cincinnati Children’s Hospital to develop a care-based model on genetic pathways. He has conducted randomized clinical trials of lysosomal storage disorders\, neurofibromatosis type 1\, RASopathies\, mTORopathies\, and several natural history studies of genetic disorders in partnership with family groups and foundations. \n\n\n\nDr. Prada joined the faculty at Cincinnati Children’s Hospital Medical Center in 2013. He became director of the RASopathies Program in 2016 and director of the Neurofibromatosis Program in 2020 at Cincinnati Children’s Hospital. In 2021\, Dr. Prada joined Lurie Children’s and the Feinberg School of Medicine at Northwestern University as the Division Head of Genetics\, Genomics and Metabolism.  \n\n\n\n\nCARLOS ROMO\, MD\n\n\n\n\nDr. Romo specializes in the diagnosis and treatment of people with neurofibromatosis\, schwannomatosis\, and brain tumors. Dr. Romo earned his medical degree from the School of Medicine and Health Sciences at Tecnológico de Monterrey in Mexico and completed his Neurology residency at the University of Arkansas for Medical Sciences\, where he served as chief resident. He then completed a Neuro-oncology clinical and research fellowship in a joint program between The Johns Hopkins University and the National Institutes of Health. Dr. Romo additionally trained as a clinical pharmacology fellow at The Johns Hopkins University and completed training on clinical cancer research at the University of Texas MD Anderson Cancer Center. In his research\, Dr. Romo studies the natural history and treatments for people with neurofibromatosis. He also studies drug pharmacokinetics and the blood-brain barrier\, and investigates better ways to reach tumors in the central nervous system. In addition to patient care and research\, Dr. Romo teaches and mentors medical and undergraduate students to help develop a future generation of neurologists. \n\n\n\n\nTINA STANKOVIC\, MD\, PHD\, FACS\n\n\n\n\nKonstantina “Tina” Stankovic\, MD\, PhD\, FACS is the Bertarelli Foundation Professor and Chair of the Department of Otolaryngology – Head & Neck Surgery at Stanford University School of Medicine. She is a Harvard-trained ear and skull-base surgeon and a Massachusetts Institute of Technology-trained auditory neuroscientist. Her clinical focus is in otology and neurotology\, and she previously served as Chief of the Division of Otology and Neurotology at Massachusetts Eye and Ear\, a teaching hospital of Harvard Medical School. In addition to her clinical and administrative duties\, she directs a basic science laboratory focused on improving diagnostics and therapeutics for sensorineural hearing loss. She has initiated and led successful cross departmental\, national\, and international collaborations to develop and deploy novel molecular diagnostics and therapeutics for hearing loss and otologic diseases in general while educating the next generation of leaders in surgery and science.  \n\n\n\n\n\n\n\n\nSponsored By\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nHOTEL INFO\nA small block of rooms has been reserved at the Naperville Holiday Inn Express for $135 per night. Rooms must be reserved by September 20th to get that rate. \n\n\n\nThis hotel is within walking distance of the iNFo Fair Venue. \n\n\n\nPlease use the link www.nfmidwest.org/2023hotel to make your reservation. \n\n\n\nHoliday Inn Express1837 Centre Point CircleNaperville\, IL 60563 \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nJoin us for a food and socializing on Friday night\, October 20th at the Holiday Inn Express in Naperville. We’ll have more information closer to the event. It will probably start around 6 pm and go to 8 pm.
URL:https://www.nfmidwest.org/event/2023-info-fair/
LOCATION:Illinois
CATEGORIES:Educational Events
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ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231019T170000
DTEND;TZID=America/Chicago:20231019T210000
DTSTAMP:20260405T164340
CREATED:20231003T163618Z
LAST-MODIFIED:20231010T172308Z
UID:10000106-1697734800-1697749200@www.nfmidwest.org
SUMMARY:Queso for a Cause @ Panchero's
DESCRIPTION:Where: Panchero’s located at 2900 Trimble Rd.\, Columbia\, MO \n\n\n\nWhen: Thursday\, October 19th from 5:00 pm to 9:00 pm \n\n\n\n\n\n\n\nFundraising team Apostolic NFers and Panchero’s Mexican Grill believe in the power of delicious food and giving back to our community. That’s why we’re excited to announce “Queso for a Cause\,” a special initiative in partnership with NF Midwest. \n\n\n\nOn Thursday\, October 19th from 5:00 pm to 9:00 pm\, every purchase of their mouthwatering food will make a difference whether you are ordering in the restaurant\, online\, or using the mobile app. For every sale\,10% of the proceeds will go directly to NF Midwest\, an organization dedicated to supporting individuals and families affected by neurofibromatosis. Team Apostolic NFers will receive credit on their team fundraising page for the Columbia Walk4NF. \n\n\n\nNot only will you satisfy your cravings with delicious Mexican fare\, but you’ll also contribute to a meaningful cause that’s close to our hearts. \n\n\n\nSo\, grab your friends and family\, head over to Panchero’s\, and indulge in our delectable queso while supporting NF Midwest. Together\, we can make a positive impact on the lives of those affected by neurofibromatosis. \n\n\n\nThank you for helping us make a difference\, one queso at a time! 🧀❤️ \n\n\n\n#QuesoForACause #PancherosCares #SupportNFMidwest
URL:https://www.nfmidwest.org/event/queso-for-a-cause-pancheros/
LOCATION:Panchero’s Mexican Grill\, 2900 Trimble Rd\, Columbia\, Missouri\, 65201
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/10/Pancheros-Apostolic-Nfers-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230910T000000
DTEND;TZID=America/Chicago:20230910T235959
DTSTAMP:20260405T164340
CREATED:20230801T145156Z
LAST-MODIFIED:20240906T141929Z
UID:10000104-1694304000-1694390399@www.nfmidwest.org
SUMMARY:North Shore Century Ride
DESCRIPTION:A Collaboration with Children’s Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. \n\n\n\n\n\nJoin NF Midwest and CTF on Sunday\, September 10th\, 2023 at the 38th annual North Shore Century Ride  — Chicagoland’s premiere cycling event. Together we’ll raise funds and awareness for neurofibromatosis.  There’s a route for everyone. Choose 100 miles\,  62 miles\, 50 miles\, or 25 miles. \n\n\n\nYou’ll ride through beautiful neighborhoods\, view unique architectural treasures\, pedal down tree-lined streets and feel the refreshing breezes of Lake Michigan while enjoying the flat to rolling countryside between Chicago and Wisconsin. \n\n\n\nREGISTRATION PROCESS\n\n\n\nSign up for the CTF Endurance Program and THEN for the ride. Use the code CTFNSC to receive a 10% discount on the registration free of $40 (this goes up if you register after August 28th). However\, the number of riders is capped at 2400 so spots could be gone soon! \n\n\n\nPlease note (if possible) that you were directed to the event by NF Midwest and let us know you signed up! \n\n\n\n\n\n\n\n\n\nSTEP 1 \n\n\n\n\nRegister with NF Endurance – this will give you support in your efforts\, add you to the NF Century team\, and allow you to create fund raising page. Your registration fee of $40 (includes t-shirt) or $25 (no t-shirt) will go towards your fundraising effort.\n\n\n\nGo to nfendurance.org/cyoc\n\n\n\nClick REGISTER\n\n\n\nSelect Join a Team\n\n\n\nChoose North Shore CenturyRide NF Endurance Team\n\n\n\nSelect General Entry (withor without tech shirt)\n\n\n\nClick Reserve\n\n\n\nFill out all registration detailsand check out\n\n\n\n\n\n\nSTEP 2 \n\n\n\n\nRegister for the North Shore Century Ride\n\n\n\nGo to evanstonbikeclub.org/nsc\n\n\n\nClick Register Now! You will have to pay a separate fee to the bike club to participate. \n\n\n\nSelect Registration type(Adult or Child)\n\n\n\nEnter all registration details\n\n\n\n\n\nPDF WITH MORE INFO TO PRINT AND SHARE
URL:https://www.nfmidwest.org/event/north-shore-century-ride/
LOCATION:Illinois
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/08/North-Shore-Century-Ride.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230824T170000
DTEND;TZID=America/Chicago:20230824T180000
DTSTAMP:20260405T164340
CREATED:20230718T191953Z
LAST-MODIFIED:20230725T192256Z
UID:10000102-1692896400-1692900000@www.nfmidwest.org
SUMMARY:Free NF1 Plexiform Neurofibroma Educational Virtual Event
DESCRIPTION:VIEW FLYER           REGISTER
URL:https://www.nfmidwest.org/event/free-nf1-plexiform-neurofibroma-educational-virtual-event-2/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/04/Koselugo-Alexion-Event-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230807T190000
DTEND;TZID=America/New_York:20230807T200000
DTSTAMP:20260405T164340
CREATED:20230718T190838Z
LAST-MODIFIED:20230801T155309Z
UID:10000101-1691434800-1691438400@www.nfmidwest.org
SUMMARY:Free NF1 Plexiform Neurofibroma Educational Virtual Event
DESCRIPTION:VIEW FLYER           REGISTER
URL:https://www.nfmidwest.org/event/free-nf1-plexiform-neurofibroma-educational-virtual-event/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/08/image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230801T000000
DTEND;TZID=America/Chicago:20230930T235959
DTSTAMP:20260405T164340
CREATED:20230729T005858Z
LAST-MODIFIED:20230729T011129Z
UID:10000103-1690848000-1696118399@www.nfmidwest.org
SUMMARY:Walk4NF End of Summer Virtual Challenge
DESCRIPTION: LEARN MORE OR TAKE THE CHALLENGE\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nTake the Walk4NF Challenge. Walk 25/50/100 miles for NF by September 30th. Earn a 2023 Walk4NF T-Shirt and other appreciation and awareness prizes.
URL:https://www.nfmidwest.org/event/walk4nf-end-of-summer-virtual-challenge/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/07/Walk4NF-Virtual-Challenge.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230730T100000
DTEND;TZID=America/New_York:20230730T140000
DTSTAMP:20260405T164340
CREATED:20230717T211400Z
LAST-MODIFIED:20230718T145818Z
UID:10000100-1690711200-1690725600@www.nfmidwest.org
SUMMARY:NF Young Adult International Summit
DESCRIPTION:REGISTER \n  \n \nJoin young adults with NF from around the world at this four hour virtual event.  Organized by NF impacted young adults from different countries\, the event will consist of educational and community building workshops presented by NF leaders\, inspirational speakers\, and a panel of young adults. \nWe’d love to see you take advantage of this once a year opportunity! The NFYA International Summit 2023 will take place via Zoom on July 30. \nReserve your spot today.
URL:https://www.nfmidwest.org/event/nfya_international_summit_2023/
LOCATION:Virtual
CATEGORIES:NF Get Togethers
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/07/LTf-NFYA-Event.PNG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230727T180000
DTEND;TZID=America/Los_Angeles:20230727T190000
DTSTAMP:20260405T164340
CREATED:20230717T194551Z
LAST-MODIFIED:20230718T192209Z
UID:10000099-1690480800-1690484400@www.nfmidwest.org
SUMMARY:Free NF1 Plexiform Neurofibroma Educational Virtual Event
DESCRIPTION:VIEW FLYER           REGISTER
URL:https://www.nfmidwest.org/event/free_pn_event_july27/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/04/Koselugo-Alexion-Event-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230716
DTEND;VALUE=DATE:20230723
DTSTAMP:20260405T164340
CREATED:20230125T192823Z
LAST-MODIFIED:20230130T204922Z
UID:10000095-1689465600-1690070399@www.nfmidwest.org
SUMMARY:Camp New Friends 2023
DESCRIPTION:Camp New Friends is a neurofibromatosis specific camp for ages 7-17. Camp New Friends offers seven days and six nights of summer fun. Scholarships are available to help with the cost of travel and camp fees to those in the NF Midwest service areas: Illinois\, Indiana\, Iowa\, Kentucky\, Wisconsin\, and the Eastern half of Missouri. Please visit here for more information.
URL:https://www.nfmidwest.org/event/camp-new-friends-2023/
LOCATION:Blue Ridge School\, 273 Mayo Drive\, St. George\, VA\, 22935\, United States
CATEGORIES:Camp
ORGANIZER;CN="Brainy Camps/Children's National Medical Center":MAILTO:info@brainycamps.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230624T090000
DTEND;TZID=America/Chicago:20230624T130000
DTSTAMP:20260405T164340
CREATED:20221221T192408Z
LAST-MODIFIED:20231218T174309Z
UID:10000094-1687597200-1687611600@www.nfmidwest.org
SUMMARY:2023 Walk4NF Columbia\, MO
DESCRIPTION:Walk4NF Columbia Details\nGet ready for the annual Columbia Walk4NF! \n\nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit!\n\n(1) Register and learn much more at Walk4NF Columbia as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events.\n\n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join.\n\n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms (coming soon!) will give you everything you need to get started! We’ll be here every step of the way!\n\n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/15167/
LOCATION:Stephens Lake Park\, Columbia\, MO\, 2001 E Broadway\, Columbia\, MO\, 65201\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230603T090000
DTEND;TZID=America/Chicago:20230603T130000
DTSTAMP:20260405T164340
CREATED:20221117T040753Z
LAST-MODIFIED:20230313T160315Z
UID:10000091-1685782800-1685797200@www.nfmidwest.org
SUMMARY:2023 Walk4NF Naperville\, IL
DESCRIPTION:Walk4NF Naperville Details\nGet ready for the 22nd Naperville Walk4NF-the largest walk and party in the park for NF in the country! \nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Naperville as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms (coming soon!) will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/walk4nf-naperville-il/
LOCATION:Naperville Riverwalk\, 912 Honorary Sindt Memorial Ct\, Naperville\, IL\, 60540\, United States
CATEGORIES:Walks 4NF
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230520T090000
DTEND;TZID=America/Chicago:20230520T130000
DTSTAMP:20260405T164340
CREATED:20230313T161309Z
LAST-MODIFIED:20231218T174235Z
UID:10000097-1684573200-1684587600@www.nfmidwest.org
SUMMARY:2023 Walk4NF Indianapolis\, IN
DESCRIPTION:Walk4NF Indianapolis Details\nGet ready for the annual Indianapolis Walk4NF! \n\nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit!\n\n(1) Register and learn much more at Walk4NF Indianapolis as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events.\n\n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join.\n\n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms located on the event page will give you everything you need to get started! We’ll be here every step of the way!\n\n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2023-walk4nf-indianapolis-in/
LOCATION:White River State Park\, 801 W Washington Street\, Indianapolis\, IN\, 46204\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230513T090000
DTEND;TZID=America/Chicago:20230513T130000
DTSTAMP:20260405T164340
CREATED:20221219T192710Z
LAST-MODIFIED:20230313T160924Z
UID:10000093-1683968400-1683982800@www.nfmidwest.org
SUMMARY:2023 Walk4NF Madison\, WI
DESCRIPTION:Walk4NF Madison Details\nGet ready for the annual Madison Walk4NF!  \nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Madison as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms (coming soon!) will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/walk4nf-madison/
LOCATION:Capital Brewery\, 7734 Terrace Avenue \, Middleton\, WI\, 53562\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230309T200000
DTEND;TZID=America/Chicago:20230309T210000
DTSTAMP:20260405T164340
CREATED:20230302T152709Z
LAST-MODIFIED:20230323T153236Z
UID:10000096-1678392000-1678395600@www.nfmidwest.org
SUMMARY:Parent's Group
DESCRIPTION:Parents Group meeting for parents of kids with NF1\, NF2\, or Schwannomatosis. Please register once to attend all future meetings. You aren’t committed to coming to all of them. \nPlease check back later for times and dates. \nMeeting Registration – Zoom
URL:https://www.nfmidwest.org/event/parents-group/
LOCATION:Illinois
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230117T180000
DTEND;TZID=America/Chicago:20230117T190000
DTSTAMP:20260405T164340
CREATED:20221216T183833Z
LAST-MODIFIED:20221216T192654Z
UID:10000092-1673978400-1673982000@www.nfmidwest.org
SUMMARY:Information Session about Classrooms That Care
DESCRIPTION:Classrooms that Care is a service-learning program that teaches students and/or educational staff about neurofibromatosis (NF) and allied disorders through educational activities and programming designed to fit into school curriculum standards. \nIf you have a student with NF\, you’re invited to attend the first ever information session about Classrooms that Care the evening of Tuesday\, January 17th. Learn more about the resources provided\, discuss how to share them with your student’s support team\, and ask questions during the Q&A session! \nPlease register here. 
URL:https://www.nfmidwest.org/event/information-session-about-classrooms-that-care/
LOCATION:Illinois
CATEGORIES:Educational Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230102T080000
DTEND;TZID=America/Chicago:20230106T170000
DTSTAMP:20260405T164340
CREATED:20220915T185512Z
LAST-MODIFIED:20220915T185619Z
UID:10000089-1672646400-1673024400@www.nfmidwest.org
SUMMARY:NF Young Adult Leadership Program
DESCRIPTION:Are you a young adult living with NF and want to make a difference in your community?\n\n\n\nIn addition to NF’s clinical impacts\, young people with NF or schwannomatosis are faced with the common and often elevated challenges of young adulthood. Yet\, resources for this group are virtually nonexistent. \nWe created the NF Young Adult Leadership Program in collaboration wit The Littlest Tumor Foundation and Texas NF to help NF youth develop critical leadership skills\, advocate for NF solutions\, educate Congress\, and advance NF research. \nThis five-day program includes workshops with leadership experts and mentors\, meetings with Congressional leaders in DC\,  and two briefings – one in the House and one in the Senate. Young leaders will break-up to visit to all 435 Congressional offices and 100 Senate offices. \n\n\n\nThe NF Young Adult Leadership Program is an opportunity for NF-affected young adults to learn effective advocacy skills and speak directly to policymakers about NF. The 5-day program is the first of its kind\, allowing young adults to make a difference in the NF community. \nProgram priorities are to create leaders\, advance research\, and bring new voices to the forefront of advocacy. \n\nBecome a leader today.\n\nThe 2023 program will be held January 2-6th\, 2023 in Washington D.C. Scholarships are available to qualified applicants. \n\n\nAPPLY HERE
URL:https://www.nfmidwest.org/event/nf-young-adult-leadership-program/
LOCATION:Illinois
CATEGORIES:Educational Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20221208T200000
DTEND;TZID=America/Chicago:20221208T210000
DTSTAMP:20260405T164340
CREATED:20221116T202833Z
LAST-MODIFIED:20221116T204452Z
UID:10000090-1670529600-1670533200@www.nfmidwest.org
SUMMARY:Discussion About Social Skills & Executive Functioning (Monthly Parent's Group)
DESCRIPTION:Register or Join \nDo you have kids with NF1\, NF2-SWN\, or Schwannomatosis? Whether they’re grown or still young\, join us online on the 2nd Thursday of every month in the evening. \nOn December 8th\, Bonnie Klein-Tasman PhD will be joining us to discuss social skills and executive functioning. Dr. Klein-Tasman is a psychologist at the University of Wisconsin – Milwaukee and director of the Child Neurodevelopment Research Lab and the UWM Child Assessment Clinic. Dr. Klein-Tasman is also an NF1 researcher. She has past and current projects on cognitive and social challenges in children with NF1. \nJoin us at www.nfmidwest.org/parentsgroup.
URL:https://www.nfmidwest.org/event/discussion-about-social-skills-executive-functioning-monthly-parents-group/
LOCATION:Online
CATEGORIES:Educational Events,NF Get Togethers
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220924T120000
DTEND;TZID=America/Chicago:20220924T220000
DTSTAMP:20260405T164340
CREATED:20220901T200914Z
LAST-MODIFIED:20231002T173933Z
UID:10000088-1664020800-1664056800@www.nfmidwest.org
SUMMARY:SamJam Music & Brewfest
DESCRIPTION:There’s something for everyone at SamJam!\n10 Hours of live music to benefit Neurofibromatosis (NF) featuring folk\, rock\, progressive bluegrass\, country\, and blues.\nThe 2022 SamJam Music and Brewfest will be held on Saturday\, Sept. 24 from noon until 10 p.m. at the Macoupin County Fairgrounds\, just north of Carlinville. The event will feature everything from R&B to country and rock and roll\, jazz\, and American folk.\n\nKnown for top-quality music\, SamJam was created in 2014 to honor Sam\, who has endured years of struggle with neurofibromatosis (NF)\, which affects 1 in every 2\,500 worldwide. NF is most often noticed in childhood or early adulthood\, and appears equally across sexes\, races\, and ethnic groups. \n\nIn its first seven editions\, SamJam has raised $71\,000\, with the funds going to NF Midwest an organization that provides research grants and support services in Illinois and five surrounding states.\n\nThis year’s version of SamJam features five bands of distinct musical talents\, including the closing act\, Al Holliday and The East Side Rhythm Band. Based on the Metro East\, the band mixes the best elements of rhythm and blues with old-school blues\, soul\, funk\, and jazz.\n\nThe band will release their fourth album later this year and has toured across the country\, as well as Europe.\n\nOther performers at SamJam include Positively 4th Street of Springfield\, which plays everything from ‘30s-style blues to rock\, country\, originals\, Bob Dylan\, and Tom Petty\, and Isaiah Christian and the Rebel Saints\, an up-and-coming country singer from Winchester\, Ill.\n\nThere’s also Pete Jive\, a Naperville performer that presents a mix of American folk\, rock\, and roots reggae\, and One Way Traffic\, a St. Louis-based progressive bluegrass group.\n\nLike last year\, SamJam will be held outside on the carnival midway of the fairgrounds\, with two pole tents and a professional stage. Food trucks\, a tub raffle\, and a wide selection of beer will also be offered. Camping is also available on the fairgrounds.\n\nTickets for SamJam are only available at the gate and are $20 for adults and $10 for students\, with free admission for 16 and under. Spectators are urged to bring lawn chairs\, blankets\, and umbrellas. For more information\, or to make donations\, visit www.SamJam4NF.com or call 217-556-4917.\n\nIf you have neurofibromatosis or schwannomatosis contact the event organizers or NF Midwest to receive complementary admission at the gate.\n\n \n\n 
URL:https://www.nfmidwest.org/event/samjam-music-brewfest/
LOCATION:Macoupin Fairgrounds\, 21368 Rte. 4\, Carlinville\, IL\, 62626\, United States
CATEGORIES:DIY Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://www.nfmidwest.org/wp-content/uploads/2022/09/SamJam-Road-Banner-2022-NF.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220903T100000
DTEND;TZID=America/Chicago:20220903T130000
DTSTAMP:20260405T164340
CREATED:20220622T153818Z
LAST-MODIFIED:20220622T153859Z
UID:10000087-1662199200-1662210000@www.nfmidwest.org
SUMMARY:Walk4NF Indianapolis
DESCRIPTION:Walk4NF Indianapolis Details\nGet ready for the Indianapolis Walk4NF (also known as Great Steps4NF)! \nPlus\, NF Midwest is celebrating 40 years as a chartered non-profit! \n(1) Register below as soon as possible so we know how many t-shirts\, volunteers\, and food to have. Form a team with your family and friends. Think of a creative team name or use your last name\, and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(2) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms on the event page will give you everything you need to get started! We’ll be here every step of the way! \n(3) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!! \nKeep in mind t-shirts are ONLY guaranteed for participants who pre-register at least 3 weeks before the event. There are some fantastic recognition gifts you can earn as you fundraise. \nWe look forward to seeing you! \n  \n 
URL:https://www.nfmidwest.org/event/walk4nf-indianapolis/
LOCATION:White River State Park\, 801 W Washington Street\, Indianapolis\, IN\, 46204\, United States
CATEGORIES:Walks 4NF
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220710
DTEND;VALUE=DATE:20220717
DTSTAMP:20260405T164340
CREATED:20220516T192502Z
LAST-MODIFIED:20220516T202207Z
UID:10000086-1657411200-1658015999@www.nfmidwest.org
SUMMARY:Camp New Friends 2022
DESCRIPTION:July 10-July 16\, 2022 for all \nJuly 8-July 16\, 2022 for teens (optional) \nRegister and learn more at www.brainycamps.com/camps/neurofibromatosis.html. \nNF Midwest provides Brainy Camps/Camp New Friends funds assist with tuition and travel for campers from our region. Application must be made to Brainy Camps/Camp New Friends.
URL:https://www.nfmidwest.org/event/camp-new-friends-2022/
LOCATION:Blue Ridge School\, 273 Mayo Drive\, St. George\, VA\, 22935\, United States
CATEGORIES:Educational Events,NF Get Togethers,Camp
ORGANIZER;CN="Brainy Camps/Children's National Medical Center":MAILTO:info@brainycamps.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220604T100000
DTEND;TZID=America/Chicago:20220604T130000
DTSTAMP:20260405T164340
CREATED:20210218T182628Z
LAST-MODIFIED:20220516T210006Z
UID:10000069-1654336800-1654347600@www.nfmidwest.org
SUMMARY:Walk4NF Naperville\, IL
DESCRIPTION:Walk4NF Naperville Details\nGet ready for the 20th IN-PERSON Naperville Walk4NF (also known as Great Steps4NF)\, the largest walk and party in the park for NF in the country! \nPlus\, NF Midwest is celebrating 40 years as a chartered non-profit! \n(1) Register and learn much more at www.nfmidwest.org/walk4nfnapervilleas soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name\, and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms on the right will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/walk4nfnaperville/
LOCATION:Illinois
CATEGORIES:Walks 4NF
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220521T100000
DTEND;TZID=America/Chicago:20220521T140000
DTSTAMP:20260405T164340
CREATED:20220319T114126Z
LAST-MODIFIED:20220516T195858Z
UID:10000085-1653127200-1653141600@www.nfmidwest.org
SUMMARY:Walk4NF Madison
DESCRIPTION:Walk4NF Madison Details\nGet ready for the 10th IN-PERSON Madison Walk4NF (also known as Great Steps4NF)!  \nPlus\, NF Midwest is celebrating 40 years as a chartered non-profit! \n(1) Register and learn much more at www.nfmidwest.org/walk4nfmadison  as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name\, and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms on the right will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2022-walk4nf-madison/
LOCATION:Capital Brewery\, 7734 Terrace Avenue \, Middleton\, WI\, 53562\, United States
CATEGORIES:Walks 4NF
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220507T100000
DTEND;TZID=America/Chicago:20220507T130000
DTSTAMP:20260405T164340
CREATED:20220319T113339Z
LAST-MODIFIED:20220319T113421Z
UID:10000084-1651917600-1651928400@www.nfmidwest.org
SUMMARY:Walk4NF Columbia
DESCRIPTION:Walk4NF Columbia Details\nGet ready for the 3rd Columbia Walk4NF (also known as Great Steps4NF)! \nPlus\, NF Midwest is celebrating 40 years as a chartered non-profit! \n(1) Register below as soon as possible so we know how many t-shirts\, volunteers\, and food to have. Form a team with your family and friends. Think of a creative team name or use your last name\, and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(2) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms on the right will give you everything you need to get started! We’ll be here every step of the way! \n(3) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!! \nKeep in mind t-shirts are ONLY guaranteed for participants who pre-register at least 3 weeks before the event. \nWe look forward to seeing you! \n  \n 
URL:https://www.nfmidwest.org/event/walk4nf-columbia/
LOCATION:Stephens Lake Park\, Columbia\, MO\, 2001 E Broadway\, Columbia\, MO\, 65201\, United States
CATEGORIES:Walks 4NF
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220430T193000
DTEND;TZID=America/Chicago:20220430T203000
DTSTAMP:20260405T164340
CREATED:20220304T181819Z
LAST-MODIFIED:20220304T181819Z
UID:10000083-1651347000-1651350600@www.nfmidwest.org
SUMMARY:1st Annual E's Hulkster Trivia Night
DESCRIPTION:Doors open at 6:30pm \nEntry deadline: April 25\, 2022 \nTeam (6-8 people): $80. Need a team? $15 and we’ll hook you up! \n\nCash prize for top team\nPrize for most decorated table\nMulligans\nSilent Auction\nBYOB & Snacks\n\nAll proceeds to benefit NF Midwest. Entry fee with name of team and phone # can be emailed or mailed. \nPlease make out checks to NF Midwest.
URL:https://www.nfmidwest.org/event/1st-annual-es-hulkster-trivia-night/
LOCATION:East Annex\, 801 E. Switzler\, Centralia\, MO\, 65240\, United States
CATEGORIES:DIY Fundraisers
ORGANIZER;CN="Dawni Henry":MAILTO:dawni.b.henry@gmail.com
END:VEVENT
END:VCALENDAR