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X-WR-CALNAME:Neurofibromatosis Midwest
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X-WR-CALDESC:Events for Neurofibromatosis Midwest
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240627T183000
DTEND;TZID=America/Chicago:20240627T193000
DTSTAMP:20260405T150351
CREATED:20240513T163756Z
LAST-MODIFIED:20240927T185756Z
UID:10000391-1719513000-1719516600@www.nfmidwest.org
SUMMARY:Monthly NF Midwest Parent Group Chat
DESCRIPTION:Designed for parents with a child of any age with NF\, this virtual chat provides a dedicated space for sharing insights and connecting with others who comprehend the unique joys and concerns of having a child with neurofibromatosis. \n\n\n\nPlease Note: Due to registration numbers and staff availability\, meeting times and dates may occasionally be subject to change. We will do our best to provide advanced notice of any adjustments.
URL:https://www.nfmidwest.org/event/nf-midwest-parent-group-chat/2024-06-27/
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/04/Parent-Chat-for-Event-Feature-Image.png
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240608T083000
DTEND;TZID=America/Chicago:20240608T130000
DTSTAMP:20260405T150351
CREATED:20231218T180125Z
LAST-MODIFIED:20240222T035926Z
UID:10000112-1717835400-1717851600@www.nfmidwest.org
SUMMARY:2024 Walk4NF Naperville\, IL
DESCRIPTION:Walk4NF Naperville Details\nGet ready for the 23rd Naperville Walk4NF-the largest walk and party in the park for NF in the country! \nPlus\, NF Midwest is celebrating over 42 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Naperville as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2024-walk4nf-naperville-il/
LOCATION:Naperville Riverwalk\, 912 Honorary Sindt Memorial Ct\, Naperville\, IL\, 60540\, United States
CATEGORIES:Walks 4NF
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/12/Headline-Image-with-NF-Logo-and-Walk4NF-Naperville.png
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240521T190000
DTEND;TZID=America/Chicago:20240521T200000
DTSTAMP:20260405T150351
CREATED:20240425T141713Z
LAST-MODIFIED:20240425T141749Z
UID:10000126-1716318000-1716321600@www.nfmidwest.org
SUMMARY:NF1 PN Educational Event/An introduction to managing NF1 PN Educational Event/
DESCRIPTION:Get the basics of treating NF1 PN from an Alexion Patient Education Manager. Hear about support options available to you and your family. \n\n\n\n\n\n\n\n \n\n\n\n\nFor more information
URL:https://www.nfmidwest.org/event/nf1-pn-educational-event-an-introduction-to-managing-nf1-pnnf1-pn-educational-event/
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/jpeg:https://www.nfmidwest.org/wp-content/uploads/2023/10/NF1_Webinar_DigitalFlyer_11.16.pdf-icon2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240518T090000
DTEND;TZID=America/Chicago:20240518T130000
DTSTAMP:20260405T150351
CREATED:20250102T163452Z
LAST-MODIFIED:20250102T163456Z
UID:10000589-1716022800-1716037200@www.nfmidwest.org
SUMMARY:2025 Walk4NF Indianapolis\, IN
DESCRIPTION:Walk4NF Indianapolis Details\nGet ready for the annual Indianapolis Walk4NF and support those with neurofibromatosis! \nPlus\, NF Midwest is celebrating over 43 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Indianapolis as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!! All this helps to create awareness of neurofibromatosis and the need to support those with it.
URL:https://www.nfmidwest.org/event/2025-walk4nf-indianapolis-in/
LOCATION:White River State Park\, 801 W Washington Street\, Indianapolis\, IN\, 46204\, United States
CATEGORIES:Walks 4NF
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2025/01/Headline-Image-with-white-border-NF-Logo-and-Walk4NF-Indy-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240518T090000
DTEND;TZID=America/Chicago:20240518T130000
DTSTAMP:20260405T150351
CREATED:20231218T175840Z
LAST-MODIFIED:20240109T165003Z
UID:10000111-1716022800-1716037200@www.nfmidwest.org
SUMMARY:2024 Walk4NF Indianapolis\, IN
DESCRIPTION:Walk4NF Indianapolis Details\nGet ready for the annual Indianapolis Walk4NF!  \nPlus\, NF Midwest is celebrating over 42 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Indianapolis as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms located on the event page will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2024-walk4nf-indianapolis-in/
LOCATION:White River State Park\, 801 W Washington Street\, Indianapolis\, IN\, 46204\, United States
CATEGORIES:Walks 4NF
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/12/Headline-Image-with-NF-Logo-and-Walk4NF-Indy.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240511T090000
DTEND;TZID=America/Chicago:20240511T130000
DTSTAMP:20260405T150351
CREATED:20231218T175206Z
LAST-MODIFIED:20240109T165025Z
UID:10000110-1715418000-1715432400@www.nfmidwest.org
SUMMARY:2024 Walk4NF Madison\, WI
DESCRIPTION:Walk4NF Madison Details\nGet ready for the annual Madison Walk4NF!  \nPlus\, NF Midwest is celebrating over 42 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Madison as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2024-walk4nf-madison-wi/
LOCATION:Capital Brewery\, 7734 Terrace Avenue \, Middleton\, WI\, 53562\, United States
CATEGORIES:Walks 4NF
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/12/Headline-Image-with-NF-Logo-and-Walk4NF-Madison-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240509T180000
DTEND;TZID=America/Chicago:20240509T190000
DTSTAMP:20260405T150351
CREATED:20240425T141507Z
LAST-MODIFIED:20240425T141510Z
UID:10000125-1715277600-1715281200@www.nfmidwest.org
SUMMARY:NF1 PN Educational Event/All about NF1\, PN\, and a treatment option.
DESCRIPTION:Learn about Koselugo and the results seen in children with NF1 PN. Gain access to support programs to help you and your family in your journey. \n\n\n\n\n\n\n\n \n\n\n\n\nFor more information
URL:https://www.nfmidwest.org/event/nf1-pn-educational-event-all-about-nf1-pn-and-a-treatment-option/
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/jpeg:https://www.nfmidwest.org/wp-content/uploads/2023/10/NF1_Webinar_DigitalFlyer_11.16.pdf-icon2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240502T180000
DTEND;TZID=America/Chicago:20240502T190000
DTSTAMP:20260405T150351
CREATED:20240425T141249Z
LAST-MODIFIED:20240425T141252Z
UID:10000124-1714672800-1714676400@www.nfmidwest.org
SUMMARY:NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child's Advocate.
DESCRIPTION:Gain a new perspective on caring for a child with NF1 PN from this presentation. Learn more about NF1 PN\, the importance of PN monitoring and how to build your NF1 PN team. \n\n\n\n\n\n\n\n \n\n\n\n\nFor more information
URL:https://www.nfmidwest.org/event/nf1-pn-educational-event-living-with-nf1-pn-how-to-be-your-childs-advocate/
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/jpeg:https://www.nfmidwest.org/wp-content/uploads/2023/10/NF1_Webinar_DigitalFlyer_11.16.pdf-icon2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240501T180000
DTEND;TZID=America/Chicago:20240501T200000
DTSTAMP:20260405T150351
CREATED:20240424T135118Z
LAST-MODIFIED:20240424T135854Z
UID:10000123-1714586400-1714593600@www.nfmidwest.org
SUMMARY:NF Awareness Event
DESCRIPTION:Join NF Midwest and Children’s Tumor Foundation for appetizers and wonderful conversation to celebrate the kickoff to NF Awareness month. Click here to register.
URL:https://www.nfmidwest.org/event/nf-awareness-event/
LOCATION:Harp and Fiddle\, 110 Main Street\, Park Ridge\, Illinois\, 60068
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/jpeg:https://www.nfmidwest.org/wp-content/uploads/2024/04/May-Awareness-Month-Gathering-Invitation-2024-Chicago-1-e1713967017863.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240425T183000
DTEND;TZID=America/Chicago:20240425T193000
DTSTAMP:20260405T150351
CREATED:20240104T141048Z
LAST-MODIFIED:20240402T202320Z
UID:10000113-1714069800-1714073400@www.nfmidwest.org
SUMMARY:NF Midwest Parent Group Chat
DESCRIPTION:Designed for parents with a child of any age with NF\, this virtual chat provides a dedicated space for sharing insights and connecting with others who comprehend the unique joys and concerns of having a child with neurofibromatosis.
URL:https://www.nfmidwest.org/event/nf-midwest-parent-chat/
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/04/Parent-Chat-for-Event-Feature-Image.png
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240424T123000
DTEND;TZID=America/Chicago:20240424T133000
DTSTAMP:20260405T150351
CREATED:20240423T185937Z
LAST-MODIFIED:20240423T185939Z
UID:10000122-1713961800-1713965400@www.nfmidwest.org
SUMMARY:Virtual Open Office Hours
DESCRIPTION:Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis\, but aren’t sure where to turn? NF Midwest is here for you! We’re excited to offer virtual open office hours\, a chance to connect directly with one of our staff in a welcoming online environment. \n\n\n\nDuring these virtual office hours\, you can: \n\n\n\n\nGet moral support: Navigating NF can be challenging. Our staff is here to offer encouragement and support.\n\n\n\nFind resources: Need help locating resources or a physician we will help to point you in the right direction. \n\n\n\nMuch more: Dealing with a situation or have a question and not sure where to start? We may not have the answer to everything\, but we might be able to connect you to someone who does. \n\n\n\n\nOthers may also be in the Zoom chat. If you would like a private meeting\, please reach out to Sarah.
URL:https://www.nfmidwest.org/event/virtual-open-office-hours-2/
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2024/04/Corrected-virtural-office-hours-e1712323514599.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240420T090000
DTEND;TZID=America/Chicago:20240420T130000
DTSTAMP:20260405T150351
CREATED:20231218T174759Z
LAST-MODIFIED:20240109T165052Z
UID:10000109-1713603600-1713618000@www.nfmidwest.org
SUMMARY:2024 Walk4NF Columbia\, MO
DESCRIPTION:Walk4NF Columbia Details\nGet ready for the annual Columbia Walk4NF!  \nPlus\, NF Midwest is celebrating over 42 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Columbia as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2024-walk4nf-columbia-mo/
LOCATION:Stephens Lake Park\, Columbia\, MO\, 2001 E Broadway\, Columbia\, MO\, 65201\, United States
CATEGORIES:Walks 4NF
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/12/Headline-Image-with-NF-Logo-and-Walk4NF-Columbia-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240410T123000
DTEND;TZID=America/Chicago:20240410T133000
DTSTAMP:20260405T150351
CREATED:20240403T190105Z
LAST-MODIFIED:20240405T132643Z
UID:10000121-1712752200-1712755800@www.nfmidwest.org
SUMMARY:Virtual Open Office Hours
DESCRIPTION:Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis\, but aren’t sure where to turn? NF Midwest is here for you! We’re excited to offer virtual open office hours\, a chance to connect directly with one of our staff in a welcoming online environment. \n\n\n\nDuring these virtual office hours\, you can: \n\n\n\n\nGet moral support: Navigating NF can be challenging. Our staff is here to offer encouragement and support.\n\n\n\nFind resources: Need help locating resources or a physician we will help to point you in the right direction. \n\n\n\nMuch more: Dealing with a situation or have a question and not sure where to start? We may not have the answer to everything\, but we might be able to connect you to someone who does. \n\n\n\n\nOthers may also be in the Zoom chat. If you would like a private meeting\, please reach out to Sarah.
URL:https://www.nfmidwest.org/event/virtual-open-office-hours/
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2024/04/Corrected-virtural-office-hours-e1712323514599.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240328T190000
DTEND;TZID=America/Chicago:20240328T200000
DTSTAMP:20260405T150351
CREATED:20231025T144429Z
LAST-MODIFIED:20240321T161059Z
UID:10000107-1711652400-1711656000@www.nfmidwest.org
SUMMARY:NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child's Advocate.
DESCRIPTION:Gain a new perspective on caring for a child with NF1 PN from this presentation by Regina Zambrano\, MD. Learn about NF1 PN\, the importance of PN monitoring\, and how to build your NF1 PN team. \n\n\n\n\n\n\n\n  \n\n\n\n\nFor more information
URL:https://www.nfmidwest.org/event/nf1-pn-educational-event/
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/jpeg:https://www.nfmidwest.org/wp-content/uploads/2023/10/NF1_Webinar_DigitalFlyer_11.16.pdf-icon2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231128T000000
DTEND;TZID=America/Chicago:20231128T235900
DTSTAMP:20260405T150351
CREATED:20231110T165240Z
LAST-MODIFIED:20231114T172225Z
UID:10000108-1701129600-1701215940@www.nfmidwest.org
SUMMARY:#GivingTuesday - The Time is Now
DESCRIPTION:“The most beautiful thing about giving is that it can start with just one person\, but it can change the lives of many. Join me in making a difference today!” \n\n\n\n\n– Zig Ziglar\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nGive a Dose of Hope this #GivingTuesday!\n\n\n\nIt’s that time of year when generosity takes center stage! Giving Tuesday is on Tuesday\, November 28th\, and we’re calling on all our incredible supporters to join hands and make a difference for NF Midwest. \n\n\n\nOn this Global Day of Giving\, you have the power to bring smiles\, hope\, and support to individuals and families affected by neurofibromatosis. Your contribution can pave the way for improved clinics\, increased awareness\, groundbreaking research\, and vital education and support in our territory. \n\n\n\nThis Giving Tuesday let’s unite with a common goal—to transform lives and create a brighter future. Every donation\, no matter how big or small\, makes a tremendous impact. \n\n\n\nMark your calendars for Giving Tuesday and get ready to be a part of something truly amazing. Together\, we can make a world of difference for NF Midwest! \n\n\n\nStay tuned for more updates and ways to get involved. Let’s spread the love and share the hope! \n\n\n\n\n\n\n\n\n\n\n\nWays to Help on #GivingTuesday\n\n\n\nOur greatest success is raising funds is with your support!  \n\n\n\nYou can donate today by using the donate button below.  Please share this campaign with your friends so they can support our cause as well.   \n\n\n\n\nDONATE TODAY!!\n\n\n\n\n\n\n\n\nWe encourage you to develop a Facebook Fundraising for Giving Tuesday to support NF Midwest. Invite your friends to join you in supporting the efforts to support those with NF and research to find a cure. There will also be a NF Midwest Facebook Fundraiser setup which you can share with your Facebook friends. \n\n\n\nAnother way is to direct people to directly support NF Midwest by sharing our The Time is Now campaign link which will be provided soon. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nThank You!\n\n\n\n\n\n\n\n\nAs always\, we want to thank you for all you do to support NF Midwest and its mission.
URL:https://www.nfmidwest.org/event/givingtuesday-the-time-is-now/
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/11/Time-is-Now-Hero-Image-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231118T170000
DTEND;TZID=America/Chicago:20231118T220000
DTSTAMP:20260405T150351
CREATED:20231003T160653Z
LAST-MODIFIED:20231005T165535Z
UID:10000105-1700326800-1700344800@www.nfmidwest.org
SUMMARY:SamJam's BBQ & Boogie
DESCRIPTION:The music and fun is in November this year! Support the ongoing efforts for NF research and support services for NF patients and their families! \n\n\n\nLive music and dinner to benefit Neurofibromatosis (NF) featuring 2 bands\, fantastic food from Fat Albert’s BBQ\, Caribbean Cruise giveaway\, silent auction\, cash bar\, and more! \n\n\n\n\n\n\n\n\n5:00 pm: Doors Open \n\n\n\n5:30-7:00 pm: Dinner \n\n\n\n6:00 pm: As the Crowe Flies (The best of bluegrass)  \n\n\n\n\n\n\n\n\n\n\n\n8:00 pm: Voodoo Players (Mixtape of rock favorites) \n\n\n\n\n\n\n\n \n\n\n\n\n\n\n\n\n\n\n\n\nSamJam is about a long journey for a man who wants to give back… and pay ahead. Sam Oswald underwent spinal fusion surgery when he was four years old. \n\n\n\nAlong with the months of recuperation from the surgery and learning to walk again\, Sam also learned of the diagnosis that would follow him throughout his life—neurofibromatosis (NF). A funny-sounding affliction\, but a neurological disorder that strikes 1 in every 2\,500 people. While you may not have heard of NF\, it affects more people than Muscular Dystrophy\, Tay-Sachs\, and Huntington’s disease combined. \n\n\n\nSince that early age\, Sam has had two brain tumors\, shunt revisions\, bone grafting on both legs\, knee surgery\, dermal tumor removal\, and eye surgery. Just a few years ago\, Sam completed two surgeries for a rare tumor in his leg\, radiation\, and chemotherapies\, and is left with a lower leg that no longer functions. \n\n\n\nMore recently\, Sam has undergone additional surgeries to remove a tumor in his chest and a recurrence of cancer in his leg. \n\n\n\nNow\, at 38 years old\, Sam has much he could complain about\, but you won’t hear it. Sam continues to lead a very positive life\, live independently\, and is a friend to everyone he meets. The years of treatment and courage would not be apparent to people first meeting Sam. \n\n\n\nAfter all this\, Sam thinks it’s time to give back… to thank those who have helped and supported him. He also wants to pay it forward so other patients with NF can get the assistance they need\, research can continue\, and the public can be more aware of this disorder that very well may strike someone you know. One of Sam’s passions is music of all kinds… and that\, my friends\, was the start of SamJam! \n\n\n\nThanks to our wonderful sponsors\, supporters\, and everyone who attended\, we have been able to raise almost $80\,000 for NF Midwest during the first eight SamJams!  Join with us to the make SamJam 2023 even better!
URL:https://www.nfmidwest.org/event/samjams-bbq-boogie/
LOCATION:The Rustic Venues\, 24720 N. Standard City Road\, Girard\, Illinois\, 62640\, United States
CATEGORIES:DIY Fundraisers
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/10/SamJam-DIY-Image-1200x630-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231021T080000
DTEND;TZID=America/Chicago:20231021T160000
DTSTAMP:20260405T150351
CREATED:20230313T174459Z
LAST-MODIFIED:20231019T024648Z
UID:10000098-1697875200-1697904000@www.nfmidwest.org
SUMMARY:2023 iNFo Fair
DESCRIPTION:GO TO REGISTRATION AND DONATION PAGE\n\n\n\n\n\n\n\n\n\n\nIn-Person Once Again! We’re So Much Better Together! \n\n\n\nA day of education for families and individuals affected by neurofibromatosis\, a genetic disorder that causes tumors to grow on nerves throughout the body. This event aims to provide a supportive environment for attendees to learn about the latest advances in research\, treatment options\, and practical resources for managing the condition. Expert speakers\, interactive panels and discussion\, and networking opportunities\, offer a valuable experience for those impacted by neurofibromatosis to connect with others and gain a deeper understanding of this complex disorder. \n\n\n\nJoin us for an all day iNFo Fair in Naperville\, Illinois on Saturday\, October 21st. We are still setting all the topics\, however expect topics that teach you things you need to know and chances to socialize and discuss! \n\n\n\n\n\nLOCATION: \n\n\n\n\n\nNorthern Illinois University – Naperville Campus1120 East Diehl RoadNaperville\, IL 60563 \n\n\n\n\n\n\n\nTIME: \n\n\n\n\n\nContinental Breakfast starts at 8:00 am CSTSessions start at 9:00 am CSTDay will end at approximately 4:00 pm CST \n\n\n\n\n\nTOPICS/SESSIONS\n\n\n\nAn approximate agenda with session times will be set a week or so before the event. TOPICS ARE NOT YET COMPLETE! \n\n\n\n\nGENERAL TOPICS\nNF Overview and Update – Learn about NF1\, NF2-related schwannomatosis\, and schwannomatosis including  new diagnostic criteria\, new statistics\, and new wording! – Carlos Prada\, MD; Lurie Children’s Hospital Neurofibromatosis Program \n\n\n\n“Where Does it Hurt?” A Conversation on NF\, Mental Health\, and Well-Being – Ethan Lester\, PhD; Clinical Psychologist; Massachusetts General Hospital \n\n\n\n\nNF1 TOPICS\nCutaneous Neurofibromas vs. Plexiform Neurofibromas. What’s the Difference? – Carlos Romo\, MD; ​Neurologist; Johns Hopkins University School of Medicine  \n\n\n\nCutaneous Neurofibroma Treatment Options and Research – Mandi Johnson\, MBA; Johns Hopkins University School of Medicine \n\n\n\nPlexiform Neurofibromas Treatment Options and Research Update – Carlos Romo\, MD; ​Neurologist; Johns Hopkins University School of Medicine   \n\n\n\n\n\n\n\nEmpowering Afternoon Conversations: Perspectives on NF – Patients’ Insights & Parenting Wisdom \n\n\n\n\n\n\n\n\n\n❤ What I Know Now That I Wish I Knew Then: Parenting a Child with NF – Gain from the wisdom of experienced parents of children with NF1. Discover valuable insights on many topics as they share their journey\, offering support to fellow parents\, and building a knowledgeable community. \n\n\n\n❤ Navigating NF: Insights from Patients – Helpful vs. Hurtful Experiences – This conversation is meant to help us all gain valuable insight from real experiences of people navigating the complexities of having NF so that we can do better and understand more.  \n\n\n\n\n\n\nNF2-RELATED SWN TOPICS\nHearing Preservation in NF2 – Konstantina Stankovic\, MD\, PhD\, FACS; Stanford Ear Institute \n\n\n\nNF2 Natural History Study Results – Christina Hayes CRNP\, National Institutes of Health \n\n\n\nOverview of Treatment Options in NF2-Related Schwannomatosis – Carlos Romo\, MD; ​Neurologist; Johns Hopkins University School of Medicine  \n\n\n\n❤ What I Know Now That I Wish I Knew Then – Gain from the wisdom of experienced patients and parents of children with NF2/SWN. Discover valuable insights on many topics as they share their journey\, offering support to fellow parents\, and building a knowledgeable community.  \n\n\n\n \n\n\n\n\n\n\nPRESENTER BIOS\n\n\n\n\nCHRISTINA HAYES\, MSN\, CRNP \n\n\n\n\nChristi is a family nurse practitioner who has worked with the Surgical Neurology Branch at the National Institutes of Health since 2012. She works with patients with NF2 and other neurosurgical disorders in both inpatient and outpatient settings. She values her role as an associate investigator on the NF2 study and enjoys working with the PI\, other investigators\, and the multi-disciplinary care team to learn more about NF2 and contribute towards efforts to progress research and improve care.   \n\n\n\n\nMANDI JOHNSON\, MBA\n\n\n\n\nMandi serves as Research Coordinator at the Johns Hopkins Department of Dermatology Cutaneous Translational Research Program. Her experience spans various research environments\, including a traineeship at the Armed Forces Research Institute of Medical Sciences in Bangkok\, Thailand. Additionally\, she is recipient of the post-baccalaureate Cancer Research Training Award from the National Institutes of Health\, Department of Dermatology. \n\n\n\nCurrently\, she dedicates her efforts to coordinating the Natural History Study of Cutaneous Neurofibromas in People with NF1. This collaborative endeavor unites the fields of Dermatology and Neurology and evaluates how cutaneous neurofibromas develop\, progress\, and how they affect the quality of life of people living with NF1. \n\n\n\nBeyond her research commitments\, Mandi is passionate about advocating for and raising awareness of NF1\, contributing to its understanding and support. \n\n\n\n\nETHAN LESTER\, PHD\n\n\n\n\nDr. Ethan Lester is a clinical psychologist at Massachusetts General Hospital\, an Assistant Professor at Harvard Medical School\, and an affiliated researcher with the Center for Health Outcomes and Interdisciplinary Research. Dr. Lester specializes in behavioral medicine and mental health care for people with neurological illnesses and conducts individual psychotherapy/counseling visits with patients at the hospital. Specific to NF\, Dr. Lester was the lead clinician on the Department of Defense Funded Clinical Trial at MGH for adults with NF1\, NF2\, and Schwannomatosis and is also the creator of the web-platform www.NF-Web.org (click to check it out)\, funded in part by NF Midwest.   \n\n\n\n\nCARLOS PRADA\, MD\n\n\n\n\nDr. Prada finds it an honor to work with children\, adults\, and families with genetic diseases. His clinical work focuses on improving health for individuals with rare diseases by developing individualized and integrated care across specialties to promote their wellbeing. For 6 years\, he co-led the RASopathies program at Cincinnati Children’s Hospital to develop a care-based model on genetic pathways. He has conducted randomized clinical trials of lysosomal storage disorders\, neurofibromatosis type 1\, RASopathies\, mTORopathies\, and several natural history studies of genetic disorders in partnership with family groups and foundations. \n\n\n\nDr. Prada joined the faculty at Cincinnati Children’s Hospital Medical Center in 2013. He became director of the RASopathies Program in 2016 and director of the Neurofibromatosis Program in 2020 at Cincinnati Children’s Hospital. In 2021\, Dr. Prada joined Lurie Children’s and the Feinberg School of Medicine at Northwestern University as the Division Head of Genetics\, Genomics and Metabolism.  \n\n\n\n\nCARLOS ROMO\, MD\n\n\n\n\nDr. Romo specializes in the diagnosis and treatment of people with neurofibromatosis\, schwannomatosis\, and brain tumors. Dr. Romo earned his medical degree from the School of Medicine and Health Sciences at Tecnológico de Monterrey in Mexico and completed his Neurology residency at the University of Arkansas for Medical Sciences\, where he served as chief resident. He then completed a Neuro-oncology clinical and research fellowship in a joint program between The Johns Hopkins University and the National Institutes of Health. Dr. Romo additionally trained as a clinical pharmacology fellow at The Johns Hopkins University and completed training on clinical cancer research at the University of Texas MD Anderson Cancer Center. In his research\, Dr. Romo studies the natural history and treatments for people with neurofibromatosis. He also studies drug pharmacokinetics and the blood-brain barrier\, and investigates better ways to reach tumors in the central nervous system. In addition to patient care and research\, Dr. Romo teaches and mentors medical and undergraduate students to help develop a future generation of neurologists. \n\n\n\n\nTINA STANKOVIC\, MD\, PHD\, FACS\n\n\n\n\nKonstantina “Tina” Stankovic\, MD\, PhD\, FACS is the Bertarelli Foundation Professor and Chair of the Department of Otolaryngology – Head & Neck Surgery at Stanford University School of Medicine. She is a Harvard-trained ear and skull-base surgeon and a Massachusetts Institute of Technology-trained auditory neuroscientist. Her clinical focus is in otology and neurotology\, and she previously served as Chief of the Division of Otology and Neurotology at Massachusetts Eye and Ear\, a teaching hospital of Harvard Medical School. In addition to her clinical and administrative duties\, she directs a basic science laboratory focused on improving diagnostics and therapeutics for sensorineural hearing loss. She has initiated and led successful cross departmental\, national\, and international collaborations to develop and deploy novel molecular diagnostics and therapeutics for hearing loss and otologic diseases in general while educating the next generation of leaders in surgery and science.  \n\n\n\n\n\n\n\n\nSponsored By\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nHOTEL INFO\nA small block of rooms has been reserved at the Naperville Holiday Inn Express for $135 per night. Rooms must be reserved by September 20th to get that rate. \n\n\n\nThis hotel is within walking distance of the iNFo Fair Venue. \n\n\n\nPlease use the link www.nfmidwest.org/2023hotel to make your reservation. \n\n\n\nHoliday Inn Express1837 Centre Point CircleNaperville\, IL 60563 \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nJoin us for a food and socializing on Friday night\, October 20th at the Holiday Inn Express in Naperville. We’ll have more information closer to the event. It will probably start around 6 pm and go to 8 pm.
URL:https://www.nfmidwest.org/event/2023-info-fair/
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/07/Info-Fair-img.png
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231019T170000
DTEND;TZID=America/Chicago:20231019T210000
DTSTAMP:20260405T150351
CREATED:20231003T163618Z
LAST-MODIFIED:20231010T172308Z
UID:10000106-1697734800-1697749200@www.nfmidwest.org
SUMMARY:Queso for a Cause @ Panchero's
DESCRIPTION:Where: Panchero’s located at 2900 Trimble Rd.\, Columbia\, MO \n\n\n\nWhen: Thursday\, October 19th from 5:00 pm to 9:00 pm \n\n\n\n\n\n\n\nFundraising team Apostolic NFers and Panchero’s Mexican Grill believe in the power of delicious food and giving back to our community. That’s why we’re excited to announce “Queso for a Cause\,” a special initiative in partnership with NF Midwest. \n\n\n\nOn Thursday\, October 19th from 5:00 pm to 9:00 pm\, every purchase of their mouthwatering food will make a difference whether you are ordering in the restaurant\, online\, or using the mobile app. For every sale\,10% of the proceeds will go directly to NF Midwest\, an organization dedicated to supporting individuals and families affected by neurofibromatosis. Team Apostolic NFers will receive credit on their team fundraising page for the Columbia Walk4NF. \n\n\n\nNot only will you satisfy your cravings with delicious Mexican fare\, but you’ll also contribute to a meaningful cause that’s close to our hearts. \n\n\n\nSo\, grab your friends and family\, head over to Panchero’s\, and indulge in our delectable queso while supporting NF Midwest. Together\, we can make a positive impact on the lives of those affected by neurofibromatosis. \n\n\n\nThank you for helping us make a difference\, one queso at a time! 🧀❤️ \n\n\n\n#QuesoForACause #PancherosCares #SupportNFMidwest
URL:https://www.nfmidwest.org/event/queso-for-a-cause-pancheros/
LOCATION:Panchero’s Mexican Grill\, 2900 Trimble Rd\, Columbia\, Missouri\, 65201
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/10/Pancheros-Apostolic-Nfers-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230910T000000
DTEND;TZID=America/Chicago:20230910T235959
DTSTAMP:20260405T150351
CREATED:20230801T145156Z
LAST-MODIFIED:20240906T141929Z
UID:10000104-1694304000-1694390399@www.nfmidwest.org
SUMMARY:North Shore Century Ride
DESCRIPTION:A Collaboration with Children’s Tumor Foundation. The NSC ride is organized by the Evanston Bicycle Club. \n\n\n\n\n\nJoin NF Midwest and CTF on Sunday\, September 10th\, 2023 at the 38th annual North Shore Century Ride  — Chicagoland’s premiere cycling event. Together we’ll raise funds and awareness for neurofibromatosis.  There’s a route for everyone. Choose 100 miles\,  62 miles\, 50 miles\, or 25 miles. \n\n\n\nYou’ll ride through beautiful neighborhoods\, view unique architectural treasures\, pedal down tree-lined streets and feel the refreshing breezes of Lake Michigan while enjoying the flat to rolling countryside between Chicago and Wisconsin. \n\n\n\nREGISTRATION PROCESS\n\n\n\nSign up for the CTF Endurance Program and THEN for the ride. Use the code CTFNSC to receive a 10% discount on the registration free of $40 (this goes up if you register after August 28th). However\, the number of riders is capped at 2400 so spots could be gone soon! \n\n\n\nPlease note (if possible) that you were directed to the event by NF Midwest and let us know you signed up! \n\n\n\n\n\n\n\n\n\nSTEP 1 \n\n\n\n\nRegister with NF Endurance – this will give you support in your efforts\, add you to the NF Century team\, and allow you to create fund raising page. Your registration fee of $40 (includes t-shirt) or $25 (no t-shirt) will go towards your fundraising effort.\n\n\n\nGo to nfendurance.org/cyoc\n\n\n\nClick REGISTER\n\n\n\nSelect Join a Team\n\n\n\nChoose North Shore CenturyRide NF Endurance Team\n\n\n\nSelect General Entry (withor without tech shirt)\n\n\n\nClick Reserve\n\n\n\nFill out all registration detailsand check out\n\n\n\n\n\n\nSTEP 2 \n\n\n\n\nRegister for the North Shore Century Ride\n\n\n\nGo to evanstonbikeclub.org/nsc\n\n\n\nClick Register Now! You will have to pay a separate fee to the bike club to participate. \n\n\n\nSelect Registration type(Adult or Child)\n\n\n\nEnter all registration details\n\n\n\n\n\nPDF WITH MORE INFO TO PRINT AND SHARE
URL:https://www.nfmidwest.org/event/north-shore-century-ride/
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/08/North-Shore-Century-Ride.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230824T170000
DTEND;TZID=America/Chicago:20230824T180000
DTSTAMP:20260405T150351
CREATED:20230718T191953Z
LAST-MODIFIED:20230725T192256Z
UID:10000102-1692896400-1692900000@www.nfmidwest.org
SUMMARY:Free NF1 Plexiform Neurofibroma Educational Virtual Event
DESCRIPTION:VIEW FLYER           REGISTER
URL:https://www.nfmidwest.org/event/free-nf1-plexiform-neurofibroma-educational-virtual-event-2/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/04/Koselugo-Alexion-Event-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230807T190000
DTEND;TZID=America/New_York:20230807T200000
DTSTAMP:20260405T150351
CREATED:20230718T190838Z
LAST-MODIFIED:20230801T155309Z
UID:10000101-1691434800-1691438400@www.nfmidwest.org
SUMMARY:Free NF1 Plexiform Neurofibroma Educational Virtual Event
DESCRIPTION:VIEW FLYER           REGISTER
URL:https://www.nfmidwest.org/event/free-nf1-plexiform-neurofibroma-educational-virtual-event/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/08/image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230801T000000
DTEND;TZID=America/Chicago:20230930T235959
DTSTAMP:20260405T150351
CREATED:20230729T005858Z
LAST-MODIFIED:20230729T011129Z
UID:10000103-1690848000-1696118399@www.nfmidwest.org
SUMMARY:Walk4NF End of Summer Virtual Challenge
DESCRIPTION: LEARN MORE OR TAKE THE CHALLENGE\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nTake the Walk4NF Challenge. Walk 25/50/100 miles for NF by September 30th. Earn a 2023 Walk4NF T-Shirt and other appreciation and awareness prizes.
URL:https://www.nfmidwest.org/event/walk4nf-end-of-summer-virtual-challenge/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/07/Walk4NF-Virtual-Challenge.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230730T100000
DTEND;TZID=America/New_York:20230730T140000
DTSTAMP:20260405T150351
CREATED:20230717T211400Z
LAST-MODIFIED:20230718T145818Z
UID:10000100-1690711200-1690725600@www.nfmidwest.org
SUMMARY:NF Young Adult International Summit
DESCRIPTION:REGISTER \n  \n \nJoin young adults with NF from around the world at this four hour virtual event.  Organized by NF impacted young adults from different countries\, the event will consist of educational and community building workshops presented by NF leaders\, inspirational speakers\, and a panel of young adults. \nWe’d love to see you take advantage of this once a year opportunity! The NFYA International Summit 2023 will take place via Zoom on July 30. \nReserve your spot today.
URL:https://www.nfmidwest.org/event/nfya_international_summit_2023/
LOCATION:Virtual
CATEGORIES:NF Get Togethers
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/07/LTf-NFYA-Event.PNG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20230727T180000
DTEND;TZID=America/Los_Angeles:20230727T190000
DTSTAMP:20260405T150351
CREATED:20230717T194551Z
LAST-MODIFIED:20230718T192209Z
UID:10000099-1690480800-1690484400@www.nfmidwest.org
SUMMARY:Free NF1 Plexiform Neurofibroma Educational Virtual Event
DESCRIPTION:VIEW FLYER           REGISTER
URL:https://www.nfmidwest.org/event/free_pn_event_july27/
LOCATION:Virtual
CATEGORIES:Educational Events
ATTACH;FMTTYPE=image/png:https://www.nfmidwest.org/wp-content/uploads/2023/04/Koselugo-Alexion-Event-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230716
DTEND;VALUE=DATE:20230723
DTSTAMP:20260405T150351
CREATED:20230125T192823Z
LAST-MODIFIED:20230130T204922Z
UID:10000095-1689465600-1690070399@www.nfmidwest.org
SUMMARY:Camp New Friends 2023
DESCRIPTION:Camp New Friends is a neurofibromatosis specific camp for ages 7-17. Camp New Friends offers seven days and six nights of summer fun. Scholarships are available to help with the cost of travel and camp fees to those in the NF Midwest service areas: Illinois\, Indiana\, Iowa\, Kentucky\, Wisconsin\, and the Eastern half of Missouri. Please visit here for more information.
URL:https://www.nfmidwest.org/event/camp-new-friends-2023/
LOCATION:Blue Ridge School\, 273 Mayo Drive\, St. George\, VA\, 22935\, United States
CATEGORIES:Camp
ORGANIZER;CN="Brainy Camps/Children's National Medical Center":MAILTO:info@brainycamps.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230624T090000
DTEND;TZID=America/Chicago:20230624T130000
DTSTAMP:20260405T150351
CREATED:20221221T192408Z
LAST-MODIFIED:20231218T174309Z
UID:10000094-1687597200-1687611600@www.nfmidwest.org
SUMMARY:2023 Walk4NF Columbia\, MO
DESCRIPTION:Walk4NF Columbia Details\nGet ready for the annual Columbia Walk4NF! \n\nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit!\n\n(1) Register and learn much more at Walk4NF Columbia as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events.\n\n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join.\n\n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms (coming soon!) will give you everything you need to get started! We’ll be here every step of the way!\n\n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/15167/
LOCATION:Stephens Lake Park\, Columbia\, MO\, 2001 E Broadway\, Columbia\, MO\, 65201\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230603T090000
DTEND;TZID=America/Chicago:20230603T130000
DTSTAMP:20260405T150351
CREATED:20221117T040753Z
LAST-MODIFIED:20230313T160315Z
UID:10000091-1685782800-1685797200@www.nfmidwest.org
SUMMARY:2023 Walk4NF Naperville\, IL
DESCRIPTION:Walk4NF Naperville Details\nGet ready for the 22nd Naperville Walk4NF-the largest walk and party in the park for NF in the country! \nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Naperville as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms (coming soon!) will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/walk4nf-naperville-il/
LOCATION:Naperville Riverwalk\, 912 Honorary Sindt Memorial Ct\, Naperville\, IL\, 60540\, United States
CATEGORIES:Walks 4NF
ORGANIZER;CN="NF Midwest":MAILTO:info@nfmidwest.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230520T090000
DTEND;TZID=America/Chicago:20230520T130000
DTSTAMP:20260405T150351
CREATED:20230313T161309Z
LAST-MODIFIED:20231218T174235Z
UID:10000097-1684573200-1684587600@www.nfmidwest.org
SUMMARY:2023 Walk4NF Indianapolis\, IN
DESCRIPTION:Walk4NF Indianapolis Details\nGet ready for the annual Indianapolis Walk4NF! \n\nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit!\n\n(1) Register and learn much more at Walk4NF Indianapolis as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events.\n\n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join.\n\n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms located on the event page will give you everything you need to get started! We’ll be here every step of the way!\n\n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/2023-walk4nf-indianapolis-in/
LOCATION:White River State Park\, 801 W Washington Street\, Indianapolis\, IN\, 46204\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230513T090000
DTEND;TZID=America/Chicago:20230513T130000
DTSTAMP:20260405T150351
CREATED:20221219T192710Z
LAST-MODIFIED:20230313T160924Z
UID:10000093-1683968400-1683982800@www.nfmidwest.org
SUMMARY:2023 Walk4NF Madison\, WI
DESCRIPTION:Walk4NF Madison Details\nGet ready for the annual Madison Walk4NF!  \nPlus\, NF Midwest is celebrating over 40 years as a chartered non-profit! \n(1) Register and learn much more at Walk4NF Madison as soon as possible. T-shirts are only guaranteed to those who register at least two weeks before the events. \n(2) Form a team with your family and friends. Think of a creative team name or use your last name and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join. \n(3) Create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms (coming soon!) will give you everything you need to get started! We’ll be here every step of the way! \n(4) Raise awareness and funds by sharing your page and story in every way possible. Social media for sure!! BUT don’t forget about email and snail mail!!
URL:https://www.nfmidwest.org/event/walk4nf-madison/
LOCATION:Capital Brewery\, 7734 Terrace Avenue \, Middleton\, WI\, 53562\, United States
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DTSTART;TZID=America/Chicago:20230309T200000
DTEND;TZID=America/Chicago:20230309T210000
DTSTAMP:20260405T150351
CREATED:20230302T152709Z
LAST-MODIFIED:20230323T153236Z
UID:10000096-1678392000-1678395600@www.nfmidwest.org
SUMMARY:Parent's Group
DESCRIPTION:Parents Group meeting for parents of kids with NF1\, NF2\, or Schwannomatosis. Please register once to attend all future meetings. You aren’t committed to coming to all of them. \nPlease check back later for times and dates. \nMeeting Registration – Zoom
URL:https://www.nfmidwest.org/event/parents-group/
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END:VCALENDAR