Neurofibromatosis Midwest

Kentucky Support Group Meeting April 21st
2018-04-21 13:00 - 17:00 (America/Kentucky/Louisville)
This month the Kentucky NF Support group meeting will be held Saturday, April 21st, from 1-5pm in Mount Sterling. One of our members and his family have invited Kentucky NF families to share an afternoon of fellowship.
They are asking everyone to please bring a dish to share. Also, bring drinks and chairs for your family. Hot dogs and hamburgers will be provided.
The group is planning on playing corn hole and fishing! If you want to fish, please bring your fishing pole and bait. It should be a lot of fun for everyone!
If you would like to join this support meeting, please RSVP to Kathleen by April 14th.
Kathleen’s email is: Kentucky@NFMidwest.org
Please let her know if you will be attending and how many will be joining you. A headcount is needed for food. Please pass this along to other NF Families in Kentucky!
Hope to see you there!

NF Adult Group Game Night in Chicago
2018-04-04 18:30 - 22:00 (America/Chicago) | Bridget McNeill’s Grill and Pub, 420 W Belmont Ave, Chicago, IL, 60657, United States
Join other adults with NF for a fun night! Start with pizza, appetizers and socializing from 6:30 to 8 pm and stay for a Pub hosted board and trivia game night! Please let us know by 3/30 if you are attending.

Kentucky Support Group Meeting March 17th
2018-03-17 10:00 - 12:00 (America/Kentucky/Louisville) | Cambridge Golf Course Restaurant, 1034 Beacon Hill, Evansville, IN, 47725, United States
The Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, March 17th, from 10 am until Noon in the Kentucky Clinic on the University of Kentucky Campus at 740 S. Limestone, 4th floor, Wing D, Conference Room J-467.
Parking is free and available in the Kentucky Clinic parking garage on the 4th floor. Please use the doors to the right to enter.
If you plan to attend, please let Kathleen know at kentucky@nfmidwest.org.
Please share this information with anyone you know who might be interested in discussing and learning more about neurofibromatosis.
If you need better directions or have any questions, email Kathleen at Kentucky@NFMidwest.org.
We hope you can make it!

Kentucky Support Group Meeting December 16th
2017-12-16 10:00 - 12:00 (America/Kentucky/Louisville) | Cambridge Golf Course Restaurant, 1034 Beacon Hill, Evansville, IN, 47725, United States
The Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, December 16th, from 10 am until Noon in the Kentucky Clinic on the University of Kentucky Campus at 740 S. Limestone, 4th floor, Wing D, Conference Room J-467.
Parking is free and available in the Kentucky Clinic parking garage on the 4th floor. Please use the doors to the right to enter.
It was decided at the last meeting to have finger foods and drinks at the December meeting. If you would like to bring something to share, please let Kathleen know at kentucky@nfmidwest.org.
If you plan to attend, please also send an email so we can get a headcount for food. 🙂
Please share this information with anyone you know who might be interested in discussing and learning more about neurofibromatosis.
If you need better directions or have any questions, email Kathleen at Kentucky@NFMidwest.org.
We hope you can make it!

Indianapolis Holiday Party
2017-12-09 17:30 - 20:30 (America/Indiana/Indianapolis) | Aquatic Center, 651 Vestal Rd, Plainfield, IN, 46168, United States
Join our Indiana NF family for a fun party to see all our Great Steps friends again and also welcome any NF families that we haven’t met yet. Hope you and your family can come. Here’s the scoop:
Organizers will provide spaghetti with meatballs, salad, breadsticks and drinks. Yum!
There’s no charge, you’re welcome to bring a side dish or dessert to share
Just for fun there will be a $10 white elephant gift exchange (Optional)
Please RSVP ASAP, with how many are attending to ruthhayes@hotmail.com .
Come and be festive, spread some good cheer and meet others in your area with neurofibromatosis! Thanks,

Giving Tuesday 11/28/2017
2017-11-28 00:00 - 23:59 (America/Chicago)
We have two days for getting deals – Black Friday and Cyber Monday. On #GivingTuesday, we have a
day for giving back. Together, people are creating a new ritual for our annual calendar. #GivingTuesday is the opening day of the giving season: a reminder of the “reason for the season.” Please make an online donation to NF Midwest on GivingTuesday 11/28/2017. #IGiveToFight NF so that no one fights NF alone. Click here to donate: #IGive2FightNF!

Kentucky Support Group Meeting November 18th
2017-11-18 10:00 - 12:00 (America/Kentucky/Louisville) | Cambridge Golf Course Restaurant, 1034 Beacon Hill, Evansville, IN, 47725, United States
This week there will be new material from NF Midwest’s Symposium and iNFo Fair, plus new information to share. Also, we’ll have a couple door prizes!!!
The Kentucky NF Midwest group is holding an NF support group meeting this Saturday, November 18th, 2017, from 10 am until Noon in the Kentucky Clinic on the University of Kentucky Campus at 740 S. Limestone, 4th floor, Wing D, Conference Room J-467.
Also, If you would like to do a Christmas ornament exchange, please bring a gift-wrapped ornament – $5 limit, please. Any children attending can bring a gift wrapped game – $5 limit to exchange as well.
Sandwiches and refreshments will be provided at this meeting. If you can, please email Kathleen at kentucky@nfmidwest.org so she knows how much food to order.
Parking is free and available in the Kentucky Clinic parking garage on the 4th floor. Follow the signs through the doors on the 4th floor parking garage – please use the doors to the right to enter (not the 4th floor parking garage main doors).Please share this information with anyone you know who might be interested in discussing and learning more about NF. If you need better directions or have any questions, please email Kathleen at Kentucky@NFMidwest.org.
Please share this information with anyone you know who might be interested in discussing and learning more about NF. If you need better directions or have any questions, please email Kathleen at Kentucky@NFMidwest.org.
Look forward to seeing you there!

GS4NF in Taylorville, IL
2017-09-23 09:00 - 13:00 (America/Chicago) | Manners Park, 100 E. Palmer, Taylorville, IL, 62568, United States
About this Event
Get ready for the 3rd Great Steps Neurofibromatosis Walk and 5K Run in Taylorville, IL! The Layton family, friends and other volunteers put on a fantastic morning for NF including a DJ, pizza, cotton candy, face painting, silent auction, 50/50 drawing and a small color run planned for the kids!
Register below as soon as possible so we know how many t-shirts, volunteers and food to have. Just form a team with your family and friends. Think of a creative team name or use your last name, and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join (just have team name before registering).
Next create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms on the right will give you everything you need to get started! We’ll be here every STEP of the way!
Keep in mind walk-up registration on the day of the walk is $25 per person and t-shirts are guaranteed for participants who pre-register at least 2 weeks before the event.
We look forward to seeing you!
THANK YOU TO OUR WONDERFUL SPONSORS!
Platinum Sponsor Level $1000

Silver Sponsor Level $500

Bronze Sponsor Level $250
Credit Collection Partners

Friend Sponsor Level $100
Country Financial-Mark Heaton

Neurofibromatosis Education, Patient Support, and Awareness Seminar
2017-09-23 09:00 - 12:00 (America/Indiana/Indianapolis) | Jordan Hall of Science, 215 Jordan Hall of Science, Notre Dame, IN, 46556
This FREE seminar in Notre Dame, Indiana provides an opportunity to raise awareness about Neurofibromatosis and share resources, experiences, & expertise to support patient/families in our community…making sure No One Fights Alone! Presented by the University of Notre Dame, the Boler-Parseghian Center, and NF Midwest.
Planned Schedule (subject to change):
9:00 – 9:15 am – Introduction: Kasturi Haldar, PhD, Director – The Boler Parseghian Center for Rare and Neglected Diseases
9:15- 9:30 am – Barbara Calhoun, MSN, RN, PNP – Natural History Study of NF and Outreach Opportunities
9:30- 10:00 am – Diana Haberkamp, Executive Director, NF Midwest
10:00-10:15 am – Break
10:15-10:45 am – Nicole Sevison, RN
10:45- 11:15 am – Mary Alice Reid, MD, Pediatrician, Beacon Pediatrics
11:15- 12:00 pm – Patient Family Discussions
This event is free and open to the public.
Please register below. If you have questions please email bcalhoun@nd.edu or call (574) 631-8831.

2017 SamJam 4NF
2017-09-16 12:00 (America/Chicago) | Macoupin Fairgrounds, 21368 Rte. 4, Carlinville, IL, 62626, United States
12 hours of music, six bands, 10 varieties of Schlafly Beer, great food, tub auction, Carribbean cruise raffle, all benefitting NF research and services for NF patients and their families. Camping available.

Kentucky Support Group Meeting September 16th
2017-09-16 10:00 - 12:00 (America/Kentucky/Louisville) | Cambridge Golf Course Restaurant, 1034 Beacon Hill, Evansville, IN, 47725, United States
The Kentucky NF Midwest group is holding an NF support group meeting this Saturday, September 16th, 2017, from 10 am until Noon in the Kentucky Clinic on the University of Kentucky Campus at 740 S. Limestone, 4th floor, Wing D, Conference Room J-467.
Parking is free and available in the Kentucky Clinic parking garage on the 4th floor. Follow the signs through the doors on the 4th floor parking garage – please use the doors to the right to enter (not the 4th floor parking garage main doors).Please share this information with anyone you know who might be interested in discussing and learning more about NF. If you need better directions or have any questions, please email Kathleen at Kentucky@NFMidwest.org.
Please share this information with anyone you know who might be interested in discussing and learning more about NF. If you need better directions or have any questions, please email Kathleen at Kentucky@NFMidwest.org.
Look forward to seeing you there!

Tee Up 4NF at Topgolf
2017-09-10 13:00 - 16:00 (America/Chicago) | Topgolf Naperville, 3211 Odyssey Ct, Naperville, IL, 60563, United States
Please join us for an afternoon of food, fun, and competition! Whether you’re an experienced golfer or new to the game, all skill levels are welcome.
Bring your family, friends or coworkers and create a team of 3 or a bay of 6. Individual golf registration is also available.
All proceeds benefit NF Midwest and help us to carry out our mission to improve the lives of people with neurofibromatosis!
Buffet Sponsors

Bay Sponsors
Wayne and Linda Goldstein
Northwest Orthopaedics & Sports Medicine
Gertrude Ginsberg
Beverly & Lewis Oberlander

Interested in becoming sponsor? The following sponsor opportunities are listed below. Please contact Danise @ danise@nfmidwest.org for more information.
Ticket Info
All include buffet, dessert and drink ticket)
$100 per golfer (single ticket)
$450 per team of 6
$225 per team of 3
$50 per spectator (includes buffet, dessert and drink ticket)
REGISTER
Sponsorship Opportunities
Event Sponsor $5000
Drink Sponsor $2500
Buffet Sponsor $1000
Bay Sponsor $500
Bay Sponsor (not attending) $250
More Sponsorship Info

GS4NF in Indianapolis, IN
2017-08-19 09:00 - 12:30 (America/Chicago) | Hummel Park, 1500 S Center St, in , Plainfield, IN, 46168, United States
About this Event
Join us for the 2nd Great Steps Neurofibromatosis Walk in Indianapolis (Plainfield), IN! We have a great committee working on this walk. Please support them in making this a fantastic event for the NF community in the area! Sign-up early to start raising funds and awareness for NF.
Register below as soon as possible so we know how many t-shirts, volunteers and food to have. Just form a team with your family and friends. Think of a creative team name or use your last name, and elect a captain who will be responsible for exchanging information with team members. Or choose an existing team to join (just have team name before registering).
Next create a fundraising page to start raising funds and awareness for NF! Ask your co-workers and neighbors to help you reach your goals. Printable Forms on the right will give you everything you need to get started! We’ll be here every STEP of the way!
Keep in mind walk-up registration on the day of the walk is $25 per person and t-shirts are guaranteed for participants who pre-register at least 2 weeks before the event.
We look forward to seeing you!
THANK YOU TO OUR WONDERFUL SPONSORS!

Kentucky Support Group Meeting August 12th
2017-08-12 10:00 - 12:00 (America/Kentucky/Louisville) | Cambridge Golf Course Restaurant, 1034 Beacon Hill, Evansville, IN, 47725, United States
The Kentucky NF Midwest group is holding an NF support group meeting this Saturday, August 12th, 2017, from 10 am until Noon in the Kentucky Clinic on the University of Kentucky Campus at 740 S. Limestone, 4th floor, Wing D, Conference Room J-467.
Parking is free and available in the Kentucky Clinic parking garage on the 4th floor. Follow the signs through the doors on the 4th floor parking garage – please use the doors to the right to enter (not the 4th floor parking garage main doors).Please share this information with anyone you know who might be interested in discussing and learning more about NF. If you need better directions or have any questions, please email Kathleen at Kentucky@NFMidwest.org.
Please share this information with anyone you know who might be interested in discussing and learning more about NF. If you need better directions or have any questions, please email Kathleen at Kentucky@NFMidwest.org.
We hope you are able to make it!
