Neurofibromatosis Midwest

$500 Wednesday Windfall
2025-10-26 18:00 - 2025-11-26 18:00 (America/Chicago)
🎁 Get ready for a little holiday windfall!

On Wednesday, November 26th—just before Thanksgiving, Black Friday, and Cyber Monday—one lucky winner will take home a $500 Visa gift card to help with holiday expenses or a little extra cheer!

Here’s how it works:🎟️ Every donation = raffle entries for the $500 Visa card.❤️ Show your support! When you donate, you can choose a team or fundraiser to receive credit for your gift. It’s a fun way to vote with your dollars and cheer on your favorite family, friend, or team.📣 Spread the word! Fundraisers can earn free entries when they share their page link—and when others (or they themselves) use that link to donate!

It’s simple: Give, share, and you might just win big!Your donation helps people living with neurofibromatosis and schwannomatosis, and you could head into the holidays $500 richer.

Donations are accepted until 6 PM CST on the 26th, and the drawing will run automatically at 6:30 PM CST.

DONATE OR REGISTER A DEDICATEE

Transitioning to Adult Care
2025-10-29 19:00 - 20:00 (America/Chicago)
Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share information about transitioning to adult care.

Objectives:

Explain how creating a plan for this change can ease the burden.

Describe the differences between healthcare for children and adults.

Explore how to move from pediatric to adult care.

REGISTER HERE

This is a virtual event.

Navigating Stress and Cultivating Wellness
2025-12-10 19:00 - 20:00 (America/Chicago)
Gina Friesl, Patient Education Manager from Alexion Pharmaceuticals, will share information about Navigating Stress and Cultivating Wellness.

Objectives:

Examines the triggers and symptoms of stress

Explores a variety of techniques for stress management

REGISTER HERE

This is a virtual event.

Young Leadership Program
2026-01-05 00:00 - 2026-01-09 23:59 (Australia/Eucla)
Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance to step up and become a champion for the NF community.

This unique 5-day program is a collaboration between NF Midwest, The Littlest Tumor Foundation, and Texas NF. It is designed to equip young adults with the leadership skills and knowledge needed to advocate for NF research and education on Capitol Hill.

Young adults will have the opportunity to:

Develop critical leadership skills: Learn from experts and gain invaluable mentorship.

Advocate for NF research: Make your voice heard and drive progress in finding a cure.

Educate Congress: Meet with lawmakers and share your story to raise awareness about NF. Engaging workshops on leadership and advocacy Meetings with influential members of Congress Briefings in both the House and Senate Visits to Congressional offices

What to expect:

Engaging workshops on leadership and advocacy

Meetings with influential members of Congress

Briefings in both the House and Senate

Visits to Congressional offices

We’re seeking motivated young adults who are ready to make a positive impact. Join us in creating a brighter future for those affected by neurofibromatosis and schwannomatosis.

The 2026 program will be held on January 5-9, 2026 in Washington, D.C.

Apply today and become part of the next generation of NF leaders! Scholarships are available to qualified applicants.
