Celebrating 35 Years

26th Annual Family Symposium November 5th

Don’t miss this opportunity to meet, mingle and learn!

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Symposium 2016

November 5, 2016 | 8:00 am - 4:00 pm CDT


Adult Registration: $25

Children 12 to 17: $10

Children 5 to 11: FREE

be informed!

Join us for an exciting day in which you will learn from the experts and share with the experienced about neurofibromatosis from about the latest progress in NF research, current treatment options, and practical advice for living with NF.

8:00 – 9:00 am Registration, Continental Breakfast and Socializing

CART (Captioning will be provided for MOST sessions. Email us for more info at )


(Topics are NOT in order of the actual schedule and may be subject to change)

  • Medical Cannabis and Chronic Pain—Jay Joshi, MD, a leader in pain management and director of the National Pain Centers.
  • Adult Complications in NF Type 1 – Scott Plotkin, MD, Massachusetts General Hospital.
  • NF2 Research and Avastin—Scott Plotkin, MD, Massachusetts General Hospital.
  • Technique for the High Quantity Removal of Neurofibromas (electrodessication) – Hubert Weinberg, MD, renowned plastic surgeon from New York.
  • NF1, NF2, Schwannomatosis (What’s the Difference) – Nikolas Mata-Machado, MD, Amita Health.
  • Hearing Loss in NF Type 2—Jeffrey Kim, MD, FACS Otolaryngologist, Georgetown University Medical Center.
  • Brain Tumors in NF Type 1—Robert Listernick, MD, Lurie Children’s Hospital.
  • Student Advocacy (504s, IEPs, Etc) – Deborah Pergament, Esq., Children’s Law Group, Chicago

(The following tables will be available during a special “table session” in which you can visit the areas that interest you and talk to an expert or advocate).

–  Medical Cannabis Dispensaries

–  Participating in Research

–  Learning Disabilities and School Issues

–  Social Security, Disability and Insurance

–  NF Clinics

–  Making a Difference—Raising Funds and Awareness

–  Parents of Children with NF

–  Adults with NF


Children age 5 to 17 are welcome to come and participate in our kids groups. They’ll enjoy a day of fun, friendship and food! Cost is $10 for children over 12. Children ages 5 to 11 are free.



Registration fee includes continental breakfast, buffet lunch and afternoon snack…and of course invaluable information and the chance to meet others. If you have financial difficulties please contact us to see if we can waive your fee.

If you’d like to avoid the extra ticketing fee for buying your ticket online you may call the office to register at 630.945.3562.

We are unable to refund any tickets purchased.

This is event is meant for those affected by neurofibromatosis and their families. If you wish to attend this symposium for other reasons (for example you have an interest in medical cannabis and chronic pain) but don’t have a connection to NF, please contact us via email at or by calling 630-945-3562.

Northern Illinois University Building
5555 Trillium Boulevard
Hoffman Estates, IL 60192 United States
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