Don’t miss this opportunity to meet, mingle and learn!
Join us for an exciting day in which you will learn from the experts and share with the experienced about neurofibromatosis from about the latest progress in NF research, current treatment options, and practical advice for living with NF.
8:00 – 9:00 am Registration, Continental Breakfast and Socializing
CART (Captioning will be provided for MOST sessions. Email us for more info at )
(Topics are NOT in order of the actual schedule and may be subject to change)
(The following tables will be available during a special “table session” in which you can visit the areas that interest you and talk to an expert or advocate).
– Medical Cannabis Dispensaries
– Participating in Research
– Learning Disabilities and School Issues
– Social Security, Disability and Insurance
– NF Clinics
– Making a Difference—Raising Funds and Awareness
– Parents of Children with NF
– Adults with NF
Children age 5 to 17 are welcome to come and participate in our kids groups. They’ll enjoy a day of fun, friendship and food! Cost is $10 for children over 12. Children ages 5 to 11 are free.
REGISTRATION IS CLOSED. PLEASE WALK-UP AND REGISTER AT THE EVENT
Registration fee includes continental breakfast, buffet lunch and afternoon snack…and of course invaluable information and the chance to meet others. If you have financial difficulties please contact us to see if we can waive your fee.
If you’d like to avoid the extra ticketing fee for buying your ticket online you may call the office to register at 630.945.3562.
We are unable to refund any tickets purchased.
This is event is meant for those affected by neurofibromatosis and their families. If you wish to attend this symposium for other reasons (for example you have an interest in medical cannabis and chronic pain) but don’t have a connection to NF, please contact us via email at or by calling 630-945-3562.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.