Celebrating 35 Years

Spring 2018 Neurofibromatosis Midwest Newsletter

Check out our Spring 2018 NF Midwest Newsletter!

The highlights of this issue include…

  • Research grants are given to the University of Minnesota regarding socialization in NF1 and a grant to the Massachusetts General Hospital for NF2
  • NF Midwest and the Midwest community help secure another $15 million in federal funding
  • NF Midwest’s annual symposium and iNFo Fair is set for October 20th
  • Do It Yourself (DIY) Fundraising 4NF – Raise funds your way!
  • SamJam4NF 2018 is September 22- you don’t want to miss this!
  • Information on the new Orphan Drug status of Selumetinib
  • NF Midwest is awarded $20K from Discount Tires Driven to Care Program
  • Various research studies and surveys are looking for participants
  • Announcement of our 2017 scholarship recipients
  • Dates and info for our 2018 Great Steps Walks 4NF
  • Meet our new Event Coordinator, Christine Christensen
  • Learn a little about our Care and Outreach Program and Liz Campana.
  • Information on Camp New Friends
  • You could win a 2-year lease on a Lexus by pledging to Birdies for Charity
  • A listing of new articles available on our website
  • Various event announcements including support group meetings; Fort Wayne TinCaps Family Night; Kentucky Support Group; Evansville, IN meetings; Central Missouri meetings; Chicago NF Adult Nights; Madison area Neighbor Day and Night

Plus much more!


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