Celebrating 35 Years

2022 Young Adult Leadership Program

Applications being accepted.

2022 Young Adult Leadership Program

Are you a young adult living with NF and want to make a difference in your community?

In addition to NF’s clinical impacts, young people with NF are faced with the common and often elevated challenges of young adulthood. Yet, resources for this group are virtually nonexistent.

We created the NF Young Adult Leadership Program to help NF youth develop critical leadership skills, advocate for NF solutions, educate Congress, and advance NF research.

This five-day program includes workshops with leadership experts and mentors, meetings with Congressional leaders in DC,  and two briefings – one in the House and one in the Senate. Young leaders will break-up to visit to all 435 Congressional offices and 100 Senate offices.

The NF Young Adult Leadership Program is an opportunity for NF-affected young adults to learn effective advocacy skills and speak directly to policymakers about NF. The 5-day program is the first of its kind, allowing young adults to make a difference in the NF community.

Program priorities are to create leaders, advance research, and bring new voices to the forefront of advocacy.

Become a leader today.

The 2022 program will be held Jan 3-7, 2022 in Washington D.C. Scholarships are available to qualified applicants.


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