Celebrating 35 Years

Help Research: Stay in Touch With Your NF Clinic

It is VERY important to visit your “NF clinic” regularly, but if  can’t and it has been a while, PLEASE try to provide that clinic an update of your condition, especially if there have been changes in your health. Having an accurate database of how individuals with NF are affected is important for knowledge of the NF community with regards to care and also for research. For instance, it is helpful for the clinic to know if you have developed cancer, seizures, unexplained high blood pressure, depression, anxiety, or any other health problems. Also, please let the clinic know if a former patient has passed away.




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