Celebrating 35 Years


Spread the Word in May!

May is Neurofibromatosis (NF) Awareness Month and Sunday, May 17th is NF Awareness Day. While the NF cause needs you…

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Today is a sad day for me, my last day at NF Midwest. I have taken a position closer to…

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Vote for Brainy Camps

Kids with NF have the opportunity to attend a one week camp in July called “Camp New Friends”. The wonderful…

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Can You Hear Us – New NF2 Initiative

Forty-four extraordinary individuals from around the world have united to share their journeys with Neurofibromatosis Type 2 (NF2). NF2: Our Journeys  is…

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Check Out Our New Website!

Check out our new website! We have been working on this for several months after dreaming about it for several…

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